My fight against KCNQ2 Epilepsy. If you have a loved one who has a #KCNQ2 mutation please feel to send us a message and we can connect. www.KCNQ2cure.org
My name is Harper Johnson and I was born on May 2nd, 2011 weighing 7 lbs 3 oz. My parents began to worry about me on day 2 as I began to have seizures. After two EEG's, an MRI, and a Spinal Tap and 5 days in the NICU at Rose Hospital I was moved to Children's Hospital in Denver via Flight for Life. I spent 3 weeks at Children's, had an abundance of tests and continued to baffle my doctors. I was i
02/13/2020
Decals for KCNQ2 - KCNQ2 Cure Alliance Decals for KCNQ2 The KCNQ2 Cure Alliance would like to introduce you to a couple of 8th Graders who have chosen the foundation for their awareness project. Hi, this is Aidan and Matthew, We are doing a school project and decided to help spread awareness of KCNQ2 epilepsy for the upcoming KCNQ2 aware...
11/11/2019
Having her Gastric Emptyig Study. She’s happy now that she was able to finally eat breakfast. Hoping it lasts!!
11/01/2019
November is National Epilepsy Awareness Month.
10/18/2019
It’s fair to say someone is excited to be on Fall Break.
08/19/2019
First day of school. She was not a fan of having to wake up early, but then remembered how much she loves her school, paras, and teacher!!
07/27/2019
Sometimes a hug from your brother is what you need to turn your day around!
07/19/2019
Even her most difficult days have a moment of a silver lining.
07/12/2019
Montana air always makes for a happy gal!!!
05/24/2019
So blessed to have such an amazing teacher and para’s for Harper....they know that it is a rare event for her to give a long hug and make the effort to catch the moment for us!!