Puzzled Miracles

Hi my name is Eldon. I am 16 years old. I am in the fight of my life. My mommy says that I am th Welcome to Puzzled Miracles. I can not wait till August.

This page was created in honor of my youngest child, Eldon Self. I am raising a very special child that has autism as well as many other medical complications. His biggest issues are he has a mitochondrial disorder, adrenal insufficiency, chronic intestinal pseudo obstruction, a prolonged QT, blood clots, autonomic dysfunction, intestinal failure, Baraister-Winter Syndrome and asthma. I am doing m

y best to help him be all that he can be. Eldon has autism and so many other medical challenges. His other conditions are asthma, hearing loss and requires hearing aids, wears glasses, has an ileostomy, and a mucous fistula, cecostomy, autism, has a central line he is entire little belly is covered with stuff to try to help him. After a lot of testing he was also labeled mild mental retardation he gets TPN through his central line and he also has a g tube. He has had numerous surgeries, procedures and hospital stays during his short life. Doctors say everything about Eldon is a big puzzle. He loves to put puzzles together and to us he is a "puzzle master" who has worked his way up to being able to do a 300 piece puzzle in a matter of hours all by himself. It is amazing to just sit and watch him put a puzzle together. He does not look at the picture, he just looks at the shapes and knows where to put the pieces. There is an edit to the part about putting puzzles together. He is slowly loosing some of these abilities and is no longer able to put small puzzles together any longer which is very hard to see. Eldon has spent most of his school age years being on home bound. The doctors say that he is too sick to go to school. For the past 4 years I have participated in something called Surfers Healing. It is awesome, Izzy and all his crew is totally awesome. I have never had so much fun in my life. I did not get to do it this year because I was in the hospital. But I look forward to surfing next year. He is no longer able to participate in Surfers Healing as he has lost his ability to walk and stand. The latest news is that his last option out there to help him would be a bowel transplant. They say that this has its own set of complications to consider as well. They say for now to keep him comfortable and let him enjoy his life while he can. And that is what I intend on doing. He went on his Make a Wish trip Jan 2015 and had the most amazing time. It was the most awesome experience. We are now in the process of going through the steps to get him put on the transplant list. They would like to remove half of his stomach and then transplant a small and large bowel. He would be the first child to have both transplanted at Duke. We have had several setbacks during this process. His last few genetic tests have come back showing mitochondrial disorder. That is not very good news in terms of getting a transplant. It is taking a lot to try to process all of this. Eldon needs a miracle in his life. I love him so much and do not know what I would do without him.

05/17/2022

Eldon received his amazing birthday cake from Icing Smiles made by American Dream Cakes, Bakery in Jacksonville, NC. It was such a blessing and an absolutely amazing cake. Eldon loved it. We can't thank them enough.

03/23/2022

Dear Family, Friends, and supporters of Eldon,
My name is Jaime and I am the owner of Quilts Of Hope. We make personalized quilts for children with serious illnesses. The quilt is personalized with a theme Eldon has picked out and messages that have been emailed to me by family, friends, and supporters.
We are now ready to start collecting messages for Eldon's quilt. If all of Eldon's family, friends, teachers, doctors, supporters could please email a short message to [email protected] it would be very appreciated. This can be a message of encouragement, a poem, a fun memory, an inside joke, a scripture, it is only limited to your imagination. once i receive your message i will write it on fabric with a fabric marker, then turn all of these messages into a quilt for Eldon. When submitting please make sure to write for Eldon Self in the subject.
We are also in need of sponsors for' Eldon's quilt. Each quilt costs about $100.00 to make so we ask that if each person submitting a message could donate $1.00 or $2 towards the quilt it is very appreciated. This is not required to submit a message, only if you can comfortably do so. The donation site is https://www.gofundme.com/4z6t8k please make sure to put for Eldon Selfs quilt on the donation. 100% of the donated money is used for Eldon. Any left over will be used to buy some accessories to go with the quilt. We are now a 501c3 so all deductions are tax deductible and you will receive a tax receipt from me.
Thank you all for helping to make this special quilt for Eldon. Thanks, Jaime Smitte
www.facebook.com/quiltsofhope2017

03/21/2022

Wow it looks great in here. They have been working on a makeover in the waiting room in clinic and it's finally done. We love how it turned out.

01/10/2022

Eldon needs our help URGENTLY!, organized by Peggy George My name is Peggy. I'm a part of Team Eldon. Patricia, Eldon's mom, really needs our help.… Peggy George needs your support for Eldon needs our help URGENTLY!

01/10/2022

I just want to go home :( it's been one thing after another this past week.

12/29/2021

Had to take sweet boy to the ER yesterday after he begged me to take him. His head was hurting really bad and different then his regular migraines. He hasn't been feeling good for a while now. I knew it wasn't nothing that he would get admitted for so I didn't take my packed suitcase. They did a CT and he has really bad sinusitis. It has been making him feel so blah. They did give him a shot of tordol that finally got him settled down enough to sleep really good. It was so busy in the ER. I didn't want to touch anything at all due to covid everywhere. Times like that I am glad he's in his chair and he doesn't have to touch anything at all in there. We are home and he is resting good. They gave him antibiotics so maybe he will start feeling better.

12/21/2021

I just realized that someone 2 days ago donated to Eldon's go fund me. I want to thank everyone that has donated and that continue to donate. That means so much to us to see how much people care about our hero Eldon. Words can't express how grateful we are. He has so much going on right now. And we go up to his appts several times a month so I do not know what we would do without having his van.

12/04/2021

Ok so I've already had people asking for our new address so they can send Eldon a Christmas card. As people know over the years he has been overjoyed with receiving cards. He loves knowing he has friends and people that love him and think about him. If you would like to send him a card our address is 8307 Slippery Elm Court Winnabow NC 28479. It's been a busy few months of appts, tests and surgical procedures. And January through April is already packed with a bunch including one major surgery and a dental surgery. So cards would definitely help to brighten his day. Thanks in advance to everyone. Some of you send cards every Christmas and birthday to him and it means so much.

12/02/2021

This has been an extremely rough day. Eldon was EXTREMELY anxious. He refused everything they asked of him. He was really upset and it kills me inside and makes feel feel sick to my stomach. He has had way to many surgeries and surgical procedures in his life. And sometimes it's just to much for his anxiety. Praying when he's done and wakes up that he is not so anxious and upset.

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170 Manning Drive, POB 1185B, CB 7236
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Puzzled Miracles

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