Rare Disorders Zimbabwe

We celebrate the fathers who walk a path few can fully understand.

To the dads of children living with rare disorders, thank you for your unwavering strength, quiet sacrifices, and steadfast love. Thank you for the hospital visits, the sleepless nights, the endless searching for answers, and for being a pillar of hope when the journey feels overwhelming.

Your courage, advocacy, and commitment make a profound difference in the lives of your children and families every single day. You remind us that fatherhood is not only about providing—it is about showing up, standing strong, and loving without limits.
Still in the spirit of Father’s Day, Rare Disorders Zimbabwe honours and celebrates you. Your resilience inspires us, your dedication empowers us, and your love changes lives.

Happy Father’s Day to all our extraordinary rare disease dads. 💙

🗳️ 2026 RDI Council Elections – Voting Now Open  Voting is now open for the 2026 RDI Council Elections. 13 candidates have been nominated for three available Council seats! We encourage all eligible members to take part in this important governance process and help shape the future of RDI 🌍🤝 📩 Voting instructions have been sent to the nominated representative of each Full Member Organization. Voting is open from 9 to 24 June. Make your voice count and help shape RDI’s future. Your Vote Matters! 💙 #RDI #RareDiseases #RareDiseaseCommunity #HealthEquity #PatientVoice

🌍 Rare diseases may be rare, but the people living with them are not invisible.

Together, we can raise awareness, build understanding, and create hope for rare families across Zimbabwe. 💙

No journey should be walked alone!
To every patient, caregiver and families navigating the challenges of rare diseases- your strength inspires us even single day! Together we continue to build a community where every voice is heard, every struggle is acknowledged and every person is supported 💙💙 ❤️

Recognizing people with Moyamoya disease today. You are seen, heard and supported!

Some diseases may not have a name, but their impact is anything but invisible. Behind every unanswered symptom is a person, a family and a story still searching for answers. On World Undiagnosed Diseases Day 2026, we stand with everyone living in the unknown- seen, valued, and not alone. Together, we raise awareness, demand research and fight for answers for all.

Every delayed diagnosis has a name, a face and a family carrying the weight of uncertainty. In the rare disease community, time is not a luxury- it is life! Early diagnosis, timely treatment and compassionate support can save lives and ease grief. Let us build a system where no family suffers in silence and no life is lost to delay!

Today we celebrate more than just a birthday, we celebrate the heart and soul behind Rare Disorders Zimbabwe. Your unwavering dedication has turned a vision into a lifeline for so many. You haven’t just built an organization, you have built a family and sanctuary where the’rare’ are seen, heard and deeply valued.
Thank you for your tireless advocacy, for being the voice for those who often feel unheard. May your day be filled with immense joy.
Happy birthday Trudy!!

Today 17 April 2026 , The National Blood Services Zimbabwe in conjunction with Zimbabwe Haemophilia Association hosted the World Haemophilia Day . Various partners attended the event, health care practitioners, caregivers and patients

We were honored to be part of program and we highlighted the urgent need for timely diagnosis of haemophilia and other rare disorders.

The commemoration emphasizes that the colour red symbolizes both blood and the invisible struggles faced by patients whose conditions often go unrecognized. Families in Zimbabwe endure years of uncertainty, misdiagnosis, and financial strain while searching for answers in a healthcare system not designed to detect rare conditions. Globally, only one in four people with haemophilia are diagnosed, with rates even lower in low‑income countries. Diagnosis is framed not as a technical step but as a human right — the gateway to appropriate care, treatment, and dignity. It transforms medical decisions, family resources, and a child’s ability to thrive. Rare Disorders Zimbabwe calls for investment in diagnostic capacity, training for community health workers, and genomic tools tailored to African populations. The organization envisions a future where Zimbabwe builds its own evidence base, contributing to global understanding while centering African patients. The speech concludes with a powerful reminder: diagnosis should not be a privilege but a promise, and every person living with haemophilia deserves recognition, care, and a healthcare system that actively seeks them out.