Cure4 Cystic Fibrosis Foundation

Congratulations to Associate Professor Elena Schneider-Futschik on receiving the TSANZ Cystic Fibrosis SIG Award for her abstract, “Postnatal CFTR modulator exposure and eye morphology in DF508 CFTR rats” 🧡

This award recognises excellence in respiratory research and scientific communication, celebrating outstanding contributions to advancing knowledge and improving patient outcomes.

At Cure4CF, we are proud to support researchers like Associate Professor Schneider-Futschik, whose work is helping shape the future of cystic fibrosis (CF) care.

Associate Professor Schneider-Futschik is currently leading a Cure4CF-funded project exploring AI-driven early detection of colorectal cancer in adults with CF, addressing an important and emerging health challenge as people with CF live longer, healthier lives.

Learn more about Elena’s research and the work we’re funding to improve outcomes for people with CF: www.cure4cf.org/current-research-projects/research-projects-colorectal-cancer-cf

In May 2014, Teresa’s world changed overnight.

Her son Simon was just 17 months old when he was diagnosed with cystic fibrosis (CF). Until that moment, Teresa and her husband Harry had never even heard of CF. They only knew something wasn’t right.

There had been sleepless nights, endless coughing, high temperatures, and the quiet but persistent instinct every parent recognises. As a mother, Teresa knew. Trusting that instinct, they kept pushing for more testing, searching for answers that had so far remained out of reach.

When the diagnosis finally came, it was a shock.

And it came at a moment when life was already on the edge of change. Teresa was heavily pregnant with their second child, Savannah. Just two weeks after Simon’s diagnosis, she gave birth.

Two life-changing moments, back-to-back. One bringing new life into the world. The other introducing a lifelong disease they didn’t yet understand.

There was no roadmap. No preparation for what daily life with CF would demand. Suddenly, everything had to be learned quickly. Treatments. Hospital visits. Daily therapies. The constant responsibility of managing a condition that becomes part of everyday life without warning.

Today, Simon’s world is shaped by that reality. But he is so much more than his diagnosis.

To Teresa, he is her first-born. Her “first everything.” A resilient young person who has grown up knowing far more about treatments and hospital rooms than most children ever should, yet continues to meet life with strength and determination.

And like every parent, Teresa holds the same hopes for her son that every family does. A future where he is not defined by CF. A life where he has choices. A world where treatments are lighter, easier, and more effective than they are today.

Thanks to research, there is more hope than there once was. Better understanding. Better treatments. New technologies that are changing what care can look like for people living with CF.

But progress does not happen by chance.

This EOFY, your support can help fund the research and innovation changing what the future looks like for children and adults living with cystic fibrosis: https://tinyurl.com/simons-story

Because people like Simon deserve the chance to grow into their dreams.

🚨 Calling all teens with CF (12–18 years) 🚨
A new clinical trial is opening soon — and you might be eligible to take part.

Introducing the AIRtivity Trial
This Phase 3 clinical trial is investigating a new medicine designed to reduce inflammation in the airways — the kind that can lead to lung damage and ongoing infections.

What’s involved?
💊 A once-daily tablet
📅 Participation for up to 18 months
Who may be eligible?
✔️ Aged 12 years or older
✔️ Weigh at least 35kg at your first visit
✔️ Have confirmed bronchiectasis (via CT scan — check with your CF care team)
✔️ Have experienced symptoms like persistent cough, recurrent infections, or frequent flare-ups
✔️ Have had at least one exacerbation (including if you're on modulator therapy)

Important to know:
Some conditions may exclude participation, including allergic bronchopulmonary aspergillosis (ABPA) or non-tuberculous mycobacterial (NTM) infection.

Clinical trials like this are essential for developing new treatments and improving outcomes for people with CF.
Speak with your CF care team to learn more about whether this trial could be right for you.

👉 Interested: https://clinicaltrials.gov/study/NCT06872892?locStr=Australia&country=AU&cond=Bronchiectasis&viewType=Card&term=airtivity&rank=1

In our 20th year as Cure4CF, and during CF Awareness Month, Cure4CF CEO Suzy Dimaline has been reflecting on ideas that stay with you long after you first come across them.

For Suzy, bacteriophages were one of those ideas.

Tiny viruses that act like nature’s own “superheroes”, seeking out and destroying harmful bacteria. The more she learned, the more she came to admire not just the science, but what it could mean for people living with cystic fibrosis today.

In this new blog, Suzy shares why bacteriophages have stayed with her, from that first moment of curiosity to seeing real progress in clinical research and patient outcomes.

It is also a reminder that what we are learning in CF has the potential to matter far beyond our community, especially as the world faces rising antibiotic resistance.

We hope you take a moment to read it. It is a reflection on hope, progress, and why we keep pushing forward.

👉 Read the blog here: www.cure4cf.org/cfmonth_reflection

Sydney, we’re getting close. 🧡

The Team Simon Foundation For Cystic Fibrosis Gala Dinner is just around the corner, and this is your chance to be part of something bigger.

A black-tie evening filled with connection, generosity and purpose - all in support of life-changing cystic fibrosis research and the families who need it most.

💫 Every ticket sold helps drive progress. Every guest becomes part of the story.

📅 Friday, 29 May 2026
📍 Rosehill Gardens Racecourse
⏰ 6:30pm

Don’t miss your seat at this incredible night.
🎟 Secure your tickets now: https://galabid.com/nightofbelief2026

Behind every step forward is a community of people willing to give their time, care, knowledge and heart.

This National Volunteer Week, we want to recognise the extraordinary volunteers who help make our work possible.

To our Board Directors, subcommittee members, Ambassadors, and every person who supports us — thank you.

CF is relentless. The work to change the future is relentless too. And through it all, your generosity, dedication and quiet acts of support help carry our mission forward.

We are deeply grateful for everything you do, and incredibly proud to have you beside us. 🧡

Thinking about hosting a Table to Cure?

Here’s your sign to do it. 👇

Your table doesn’t need to be elaborate. Think:
🍷 wine + cheese
🍕 pizza night
🍺 beers with mates
☕ coffee catch-up
🥗 simple dinner at home

Easy to host. Big impact.

Sign up in the next 24 hours and two lucky people will win a Table to Cure Starter Pack, featuring goodies from:
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Host in May or anytime before EOFY: www.tabletocure.com

Simple gathering. Meaningful impact. 🧡