Muscular Dystrophy Australia

Delivering a brighter today and a more empowered tomorrow for people living with neuromuscular conditions.

Muscular Dystrophy Australia is your one-stop-shop for information, support, research, and connection. From the day of diagnosis, we're with you for your whole journey of living with a neuromuscular disease.

19/06/2026

Meet Mary 👋 Living with Limb Girdle Muscular Dystrophy, Mary has never let her diagnosis stop her from embracing new experiences. From travelling through to finding connection at Muscular Dystrophy Australia's support group lunches, she believes life is meant to be lived to the fullest.

In her interview, Mary shares her love of travel 🛫 the challenges she's faced along the way, and the importance of staying connected with others who understand the lived experience of disability.

Read Mary’s story on our blog, and if you're looking to connect with others in the neuromuscular community, join us at our next Adult Support Group Lunch on Saturday, 20 June. We'd love to see you there. https://mda.org.au/muscular-dystrophy/posts/marys-story-a-life-of-curiosity-connection-and-adventure

Photos from Muscular Dystrophy Australia's post

15/06/2026

Right now, every dollar donated is being doubled‼️ Meaning your support goes twice as far in helping fund vital research and support services for people who are living with neuromuscular conditions.

That’s twice the potential for progress, and twice the impact for children like Oscar and their families. Every contribution is life changing, every contribution matters 💙

👋Supercharge your impact today. https://bit.ly/donate-mda

12/06/2026

For children like Oscar, who loves to play sport with his friends, research focused on slowing the disease progression of Duchenne muscular dystrophy (DMD) offers more time spent enjoying the activities they love. Oscar's mum Lisa says: 'That’s why research is so important to us.’

Your support funds life-changing research initiatives for children like Oscar who are living with a neuromuscular condition. Show your support today. https://donate.mda.org.au/oscar

10/06/2026

Have you been wanting to learn more about assistive technologies and how they could benefit you? 🖥️

Our online Accessing Assistive Technology workshop is a free event AND includes a live Q&A session with an Assistive Technology specialist, who will answer your questions and share insights into how assistive technologies can support you.

📲 Sign up to this free event today and browse our range of upcoming workshops through the link in our bio!

09/06/2026

“Don’t ever think there's something you can’t do.” Sometimes, all it takes is one person to start knocking, and suddenly, doors begin to open.

In conversation with Muscular Dystrophy Australia, Rita Havea tells us her journey hasn’t always been easy. In many spaces, especially in fashion and media, representation of disability is still limited. Instead of waiting for change, she chose to be part of it.

She says, “I just keep knocking on those closed doors, I just keep knocking.” ✨ Rita is proof that when you continue to show up and speak up for yourself, change is possible.

Thank you, Rita, for sharing your story with us. Read the full interview today! https://mda.org.au/muscular-dystrophy/posts/ritas-journey-creating-space-to-be-seen-and-heard

04/06/2026

This Pride Month, we celebrate the diversity, strength, and identity of LGBTQIA+ people within our community.

We are committed to fostering an inclusive environment where everyone is valued and able to thrive exactly as they are.

03/06/2026

June is shaping up to be full of connection, learning, and community here at Muscular Dystrophy Australia 💙

We’re excited to be offering a range of events designed to bring people together - whether you’re looking to connect with others, learn something new, or simply take part in a relaxed and welcoming space.

This includes our Book Club and Assistive Technology Workshop, both of which are free and held online, making them easy to join from anywhere 💻️ Alongside these, we’ll also be hosting social events such as our Adults Support Group. There really is something for everyone across the next month.

➡️ Swipe through to see what’s coming up and visit our website to register for any events that interest you. https://mda.org.au/programs-and-events

29/05/2026

Every puzzle tells a story - but it can’t be completed without that one final piece 🧩 Your donation could be the missing piece that brings everything together - to make a real impact on the lives of those living with neuromuscular conditions.

It doesn’t take the whole puzzle, just one piece at a time. And your piece matters more than you think.

Be the piece that completes the picture. Donate today! https://donate.mda.org.au/oscar

28/05/2026

Meet Shannon 👋 Muscular Dystrophy Australia's Head of Fundraising and Marketing. With over 20 years’ experience in the not-for-profit sector, Shannon brings a wealth of insight to every campaign and fundraising initiative we deliver.

Her passion for our community sits at the heart of everything she does. She believes strongly in the power of connection, which is reflected in the collaborative, purpose-driven team she has built - focused on creating fundraising initiatives with lasting impact.

Outside of work, you’ll often find her out walking her two dogs or enjoying a ride on her motorbike. We’re incredibly grateful for you, Shannon, and all the passion and expertise that you bring to our team and our community 💙

Want to know more about our Fundraising initiatives? Connect with Shannon and the team here: https://mda.org.au/donors-and-supporters

27/05/2026

Rita believes representation matters. 💙 Through advocacy, public speaking, and sharing her lived experience, Rita is challenging perceptions of disability on a daily basis.

Muscular Dystrophy Australia's Tugba Acisu interviewed Rita Havea to discuss how she is advocating to create positive change for people living with neuromuscular conditions.

Explore how Rita is driving advocacy, visibility, and change - read the full story
https://mda.org.au/muscular-dystrophy/posts/ritas-journey-creating-space-to-be-seen-and-heard

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Location

Parkville

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Telephone

+61393209555

Website

http://www.mda.org.au/

Address

369 Royal Parade
Parkville, VIC
3052

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm