Muscular Dystrophy Australia

Vale Neale Daniher AO.

Neale Daniher was one of Australia's most fearless advocates, a man who faced his diagnosis of Motor Neurone Disease (MND) and turned it into a movement that will outlast all of us.

As the founder of FightMND, he helped direct more than $117 million towards MND research. But beyond the numbers, he showed what it looks like to face a progressive neurological condition with courage, humour, and an unshakeable determination to make things better for all generations.

At Muscular Dystrophy Australia, we are proud to stand alongside the broader neuromuscular and neurological community in honouring his legacy. His advocacy has raised the bar for all of us - and his example will continue to inspire the work we do every day for people living with neuromuscular conditions across Australia.

Our deepest condolences to his family, his FightMND community, and everyone who loved him.

For our Parent's & Carers evening we will be teaming up with Carers Victoria for a fun and supportive evening.

Guest speaker Tania Daniels (Carers Victoria) will be bringing a wealth of experience and a deep passion for empowering carers through advocacy and practical knowledge of support services available.

Event Details

📆 Thursday 28 May 2026
🕐 6:00 PM - 8:00 PM AEST
📍Ground Floor, 369 Royal Parade, Parkville VIC

We encourage you to join us for an evening full of fun, including exciting prizes, beautifully prepared gift bags and delicious food and beverages provided on the night. Register by 9am on Monday, 25 May to secure your spot!

https://mda.org.au/parents-carers-evening

Our online Life Skills Workshops are now FREE, with thanks to the generous support of the Cybec Foundation. 💙

Whether you're learning how to choose a support worker, researching which assistive technologies would work best for you or planning your first holiday - there is sure to be a workshop for you.

📲 Browse our range of upcoming workshops and register today! https://mda.org.au/muscular-dystrophy-life-skills-workshops

Happy National Volunteer Week 💙

We’re taking a moment to recognise and celebrate the incredible people who pour their time, energy, and heart into supporting our community.

To all our volunteers, including Ben and the MDA Diva Knitters (pictured) - thank you 👏Your kindness, and dedication make a real difference every day. You all put so much heart showing up for our community, and here at MDA we are deeply grateful for everything you do.

We are welcoming expressions of interest to join our wonderful volunteer community. Apply today! https://mda.org.au/volunteer

A huge thank you to our incredible team of runners who participated in the HOKA Half Marathon in Sydney on behalf of Muscular Dystrophy Australia. 💙

Together, you’ve raised an amazing $16,000, and that figure is still climbing 👏 Your commitment to fundraising for our community truly means the world to us.

These donations help us to continue funding programs, services, and research in support of people living with neuromuscular conditions. We are beyond proud of every single one of you who raised awareness of our mission. Thank you for making every step count.

Make a difference - start fundraising with us today! https://fundraise.mda.org.au/

Meet, Oscar! He is a typical ten-year old, who loves playing outside with his friends. We first met Oscar and his parents Lisa & Brendan through our Little Legends program, and we would love to introduce them to you.

When Oscar was in kindergarten, his teachers noticed his walk was unique. Upon seeing a Paediatric Physio, he was diagnosed with Duchenne's muscular dystrophy, a condition which will continue to impact on Oscar's mobility over time.

You can help fund vital research which will focus on stopping disease progression. We urge you to consider giving a gift which will make a lasting impact on children and families living with Duchenne today, by donating to our Tax Appeal. https://donate.mda.org.au/oscar