Myalgic Encephalomyelitis Group Australia Ltd

20/10/2026

🤓🥳🏅🙏💙

They are also the longest specialised Australian research centre.

We are grateful for their commitment, dedication and progress in research on ME and ME/CFS.

14/10/2026

Sometimes it can feel like things are standing still. Especially for severe ME patients who can't easily participate in research. But in the Netherlands, they are being included.

"Patients with ME or postcovid are often so ill that they do not leave their home. That is why they hardly participate in scientific research. Doctors now drive through the country on a laboratory bus: ‘This experience cannot be described.’"

"There, Dymphna's blood is stored in one of the largest biobanks in the world with body material from PAIS patients. She is almost the thousandth participant, says Bosch, who heads the research consortium that includes the biobank from the Amsterdam UMC and the LUMC. Scientists from home and abroad can request blood, cells, saliva, f***s and DNA and RNA samples from patients with ME or another post-acute infection syndrome for their research."

http://archive.today/8DqOm

13/10/2026

Congratulations! 🥳🌟🏅💙

𝗡𝗖𝗡𝗘𝗗 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵𝗲𝗿 𝗪𝗶𝗻𝘀 𝗖𝗵𝗮𝗻𝗰𝗲𝗹𝗹𝗼𝗿'𝘀 𝗠𝗲𝗱𝗮𝗹 𝗳𝗼𝗿 𝗘𝘅𝗰𝗲𝗹𝗹𝗲𝗻𝗰𝗲 𝗳𝗼𝗿 𝘁𝗵𝗲 𝗣𝗵𝗗 𝗧𝗵𝗲𝘀𝗶𝘀

We are thrilled to share that Dr. Sasso has been awarded the Chancellor's Medal for Excellence for the PhD Thesis of 2025 by Griffith University, recognising her as one of the highest-achieving PhD graduates and the Griffith Health Group's top-ranked candidate for 2025!

Presented by The Honourable Andrew Fraser, Chancellor of Griffith University, this award celebrates Etianne's outstanding contribution to research at the NCNED.

Her groundbreaking work on immune cell ion channel dysfunction is helping uncover the pathomechanism of ME/CFS, long COVID and GWI research that could shape future treatments for patients living with these debilitating conditions.

Congratulations also to her supervisory team, Professor Sonya Marshall-Gradisnik, Dr Natalie Eaton-Fitch, and Dr Kiran Thapaliya, for their guidance and support along the way.

Best wishes,
Sonya and the NCNED team

NCNED would like to express our gratitude and appreciation to all the volunteers, Support Groups and the following Organizations:
• The Stafford Fox Medical Research Foundation
• National Health and Medical Research Council
• MERUK
• Dr John Hamwood
• The McCusker Charitable Foundation
• Mr Adrian Flack
• Talei Stewart
• The Alison Hunter Memorial Foundation
• The Buxton Foundation
• The Henty Community
• The Blake Beckett Foundation
• Change for ME Charity
• QLD ME/CFS/FM Support Association
• WA ME/CFS and Lyme Association
• Fibromyalgia ME/CFS Gold Coast Support Group Inc
• Tweed ME/CFS/FM Lyme Support Group
• ME/CFS South Australia Inc
• ME/CFS & FM Association NSW Inc
• ME/CFS Australia

Griffith University, Griffith Health, , , , , , , , , , , , , , , , , , Tom Kindlon's ME CFS & related page: News, Research and more, ME/CFS Australia, ME Australia, ME CFS and Lyme Association of WA, ME/CFS/FM Support Association QLD Inc, Fibromyalgia me/cfs Gold Coast Support Group Inc., Chronic Fatigue Syndrome & Fibromyalgia NSW, Australia, My QoL, ME/ CFS South Australia Inc, Myalgic Encephalomyelitis Group Australia Ltd, ME Research UK, Me/cfs San Diego, Myalgic Encephalomyelitis M.E Chronic Fatigue Syndrome CFS Science, Leeds ME Network, Stichting ME Research, Bristol ME Support Group, Oxfordshire ME Group for Action, ME Long Covid unite SA, May 12th International ME CFS FM Awareness Day Australia, FJD/Robotech Robot line markers Australia

08/10/2026

🥳💙

𝗡𝗖𝗡𝗘𝗗 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵𝗲𝗿𝘀 𝗜𝗻𝘃𝗶𝘁𝗲𝗱 𝘁𝗼 𝗣𝗿𝗲𝘀𝗲𝗻𝘁 𝗮𝘁 𝗡𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗩𝗲𝘁𝗲𝗿𝗮𝗻𝘀 𝗛𝗲𝗮𝗹𝘁𝗵 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲

The National Centre for Neuroimmunology and Emerging Diseases (NCNED) is proud to announce that Distinguished Professor Sonya Marshall-Gradisnik and Dr Natalie Eaton-Fitch were recently invited speakers at the National Pro Patria Centre Conference in Canberra, a leading forum focused on advancing the health and wellbeing of Australian veterans.

During the conference, Professor Marshall-Gradisnik presented NCNED's research examining the significant and long-lasting impacts of Gulf War Illness on the health and wellbeing of Gulf War veterans. Her presentation highlighted the ongoing challenges faced by veterans and the importance of continued scientific investigation to better understand the biological mechanisms underlying chronic illness following military service.

Dr Eaton-Fitch delivered a presentation showcasing the latest findings from NCNED's epidemiological research involving veterans who served during the 1990-1991 Gulf War. Her presentation provided valuable insights into the long-term health outcomes, disease burden and lived experiences of this veteran population, reinforcing the need for ongoing research and evidence-based support services.

The invitation to present at this prestigious national conference reflects NCNED's growing leadership and expertise in veteran health research. Through multidisciplinary investigations and strong stakeholder engagement, NCNED continues to contribute important knowledge that informs clinical practice, policy development and future research directions for veterans living with complex chronic health conditions.

We extend our sincere thanks to the National Pro Patria Centre for the opportunity to share our work and engage with researchers, clinicians, policymakers and veteran advocates from across Australia.

Best wishes,
Sonya and the NCNED team

NCNED would like to express our gratitude and appreciation to all the volunteers, Support Groups and the following Organizations:
• The Stafford Fox Medical Research Foundation
• National Health and Medical Research Council
• MERUK
• Dr John Hamwood
• The McCusker Charitable Foundation
• Mr Adrian Flack
• Talei Stewart
• The Alison Hunter Memorial Foundation
• The Buxton Foundation
• The Henty Community
• The Blake Beckett Foundation
• Change for ME Charity
• QLD ME/CFS/FM Support Association
• WA ME/CFS and Lyme Association
• Fibromyalgia ME/CFS Gold Coast Support Group Inc
• Tweed ME/CFS/FM Lyme Support Group
• ME/CFS South Australia Inc
• ME/CFS & FM Association NSW Inc
• ME/CFS Australia Ltd

Griffith University, Griffith Health, , , , , , , , , , , , , , , , , , Tom Kindlon's ME CFS & related page: News, Research and more, ME/CFS Australia, ME Australia, ME CFS and Lyme Association of WA, ME/CFS/FM Support Association QLD Inc, Fibromyalgia me/cfs Gold Coast Support Group Inc., Chronic Fatigue Syndrome & Fibromyalgia NSW, Australia, My QoL, ME/ CFS South Australia Inc, Myalgic Encephalomyelitis Group Australia Ltd, ME Research UK, Me/cfs San Diego, Myalgic Encephalomyelitis M.E Chronic Fatigue Syndrome CFS Science, Leeds ME Network, Stichting ME Research, Bristol ME Support Group, Oxfordshire ME Group for Action, ME Long Covid unite SA, May 12th International ME CFS FM Awareness Day Australia, FJD/Robotech Robot line markers Australia

07/10/2026

Happy October!

Here is our October Newsletter!

We hope you enjoy this edition and find it interesting and informative. 🍀Thank you for being part of our community and supporting our work.

Warmly
Team MEGA 💙

https://sh1.sendinblue.com/mk/sc/PCPCYHGlKDuE7yWRM6nQ5KZZjl4lQbSIw0KbRQ8ACwV_Ph9QVk0JYMI0wUSD3_GYz82KChZiGfWZoxH_67hGiNCpS9Y4pA?t=1791295858716

30/09/2026

❗Final Reminder❗‍🙏

📢 Health Professionals, we want to hear from you! 🧐

Hi everyone,

I’m Lydia, a 4th-year Occupational Therapy student at Australian Catholic University (ACU), currently completing a project with ME Group Australia (MEGA).

I’m developing a resource to support Health Professionals in safely assessing and prescribing assistive technology (AT) for people with Myalgic Encephalomyelitis (ME).

I’m particularly interested in hearing from Health Professionals with experience working with ME, as well as Health Professionals who don’t have extensive experience with ME. Both perspectives are valuable in identifying gaps and understanding what information and guidance would be most useful when working with this population.

⏱️ Estimated completion time: 5-15 minutes
🔗 Survey links

🤓 Health Professionals with ME expertise: https://forms.gle/zUQ1iHsHk47aS7RU8

🧐 Health Professionals with limited ME expertise: https://forms.gle/NpJGb4eHo76cune67

We'd love to hear back by 2nd October, with the survey closing on this date.

Thank you to anyone who can contribute! Your experience and perspective would be greatly appreciated and will help inform the development of the resource.



Your OT Tutor ME & CFS Exhaustion Management by Telehealth Melanie Weeks Occupational Therapy

30/09/2026

❗Final Reminder❗🙏

📢 Do you live with Myalgic Encephalomyelitis (ME)? We’d love to hear from you! 💙

Hi everyone,

I’m Lydia, a 4th-year Occupational Therapy student at Australian Catholic University (ACU) , currently completing a project with ME Group Australia (MEGA).

I’m developing a resource to support Health Professionals in safely assessing and prescribing assistive technology (AT) for people with ME.

As part of this project, I’m seeking people with lived experience of ME to share their experiences of accessing, trialling, using or being prescribed assistive technology.

Your perspective can help identify what worked well, what could have been better, and what information or support may be helpful for others when working with Health Professionals around assistive technology.

⏱️ Estimated completion time: 10-30 minutes

🔗 Complete the survey here:
https://forms.gle/w3s4Arn8TLYWhJf68

📅 Survey closes: 2 October 2026

Your experience is valuable, and I’d really appreciate you taking the time to contribute.

Please also feel free to share this post with others who may have relevant lived experience.

Thank you for helping inform the development of this resource!



MillionsMissing Australia ME Advocacy Network Australia Fibromyalgia ME CFS Australia Bridges & Pathways ME/CFS Australia ME/ CFS South Australia Inc Emerge Australia Inc Not Just Tired ME/CFS/FM Support Association QLD Inc ME CFS and Lyme Association of WA

29/09/2026

🥳💙

𝗖𝗲𝗹𝗲𝗯𝗿𝗮𝘁𝗶𝗻𝗴 𝗕𝗿𝗲𝗮𝗻𝗻𝗲 𝗔𝗿𝗰𝗵𝗲𝗿’𝘀 𝗛𝗼𝗻𝗼𝘂𝗿𝘀 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗦𝘂𝗰𝗰𝗲𝘀𝘀

We are delighted to congratulate Breanne Archer on the successful completion of her Honours research project at the National Centre for Neuroimmunology and Emerging Diseases (NCNED) that investigated immunological and cellular mechanisms in long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

Throughout her Honours candidature, Bree demonstrated exceptional dedication, scientific curiosity and research excellence. Her work has contributed important new knowledge to the understanding of both long COVID and ME/CFS, two complex and debilitating conditions that continue to impact millions of people worldwide. Through meticulous laboratory investigation and data analysis, Bree reported significant novel findings, advancing our understanding of the immunological and cellular changes associated with these illnesses. Her research has generated valuable insights that will help inform future studies and support ongoing efforts to improve diagnosis, treatment and patient outcomes. These research findings will be presented at conferences and submitted for publication in the coming months.

Beyond her scientific achievements, Bree has been a highly valued member of the NCNED research team, consistently demonstrating professionalism, enthusiasm and a commitment to high-quality research. Her ability to translate complex scientific questions into meaningful research outcomes reflects the qualities of an emerging research leader.

Adding to this remarkable achievement, Bree has been awarded the opportunity to undertake a research scholarship in Switzerland, where she will be working within a leading Swiss research laboratory until early December. This international placement represents a significant milestone in her research career and will provide invaluable opportunities to further develop her scientific expertise, collaborate with international researchers, and broaden the impact of her work on a global stage.

We are incredibly proud of all that Bree has accomplished and excited to see what she achieves during this next chapter of her research journey. We wish her every success in Switzerland and look forward to hearing from her in the coming months.

Best wishes,
Sonya and the NCNED team

NCNED would like to express our gratitude and appreciation to all the volunteers, Support Groups and the following Organizations:
• The Stafford Fox Medical Research Foundation
• National Health and Medical Research Council
• MERUK
• Dr John Hamwood
• The McCusker Charitable Foundation
• Mr Adrian Flack
• Talei Stewart
• The Alison Hunter Memorial Foundation
• The Buxton Foundation
• The Henty Community
• The Blake Beckett Foundation
• Change for ME Charity
• QLD ME/CFS/FM Support Association
• WA ME/CFS and Lyme Association
• Fibromyalgia ME/CFS Gold Coast Support Group Inc
• Tweed ME/CFS/FM Lyme Support Group
• ME/CFS South Australia Inc
• ME/CFS & FM Association NSW Inc
• ME/CFS Australia Ltd

Griffith University, Griffith Health, , , , , , , , , , , , , , , , , , Tom Kindlon's ME CFS & related page: News, Research and more, ME/CFS Australia, ME Australia, ME CFS and Lyme Association of WA, ME/CFS/FM Support Association QLD Inc, Fibromyalgia me/cfs Gold Coast Support Group Inc., Chronic Fatigue Syndrome & Fibromyalgia NSW, Australia, My QoL, ME/ CFS South Australia Inc, Myalgic Encephalomyelitis Group Australia Ltd, ME Research UK, Me/cfs San Diego, Myalgic Encephalomyelitis M.E Chronic Fatigue Syndrome CFS Science, Leeds ME Network, Stichting ME Research, Bristol ME Support Group, Oxfordshire ME Group for Action, ME Long Covid unite SA, May 12th International ME CFS FM Awareness Day Australia, FJD/Robotech Robot line markers Australia