Cystic Fibrosis Canada

Cystic Fibrosis Canada

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Cystic Fibrosis Canada is a Canada-wide health charity helping Canadians with cystic fibrosis live longer, healthier lives.

The Cystic Fibrosis Canada page is an online community where people can share information, tell their story, and interact with one another.

06/01/2026

Hello June ☀️💙 Looking for connection this summer? Peer Connect is back with three sessions this month to connect with others in the CF community!

Whether you’re living with CF or supporting someone who does, these small group sessions are the space to share experiences, ask questions and connect with people who get it:

🌼 June 2 | 8 PM ET | For: Adults (18+) living with CF

🌼 June 8 | 8 PM ET | For: Parents & guardians of people living with CF

🌼 June 11 | 7 PM ET | For: Young adults living with CF

Pull up a chair, join from wherever you are and spend an evening in community 💙 Register now: https://cysticfibrosis.ca/peer-connect

05/31/2026

And that’s a wrap on Walk Day! 👟

Thank you to every participant, volunteer, and supporter who helped make this year unforgettable. 💙 Take a minute to watch this special video from our President and CEO, Kelly Grover, and members of the CF community as we celebrate the impact we’re making together.

We’d also like to express our gratitude towards our Visionary Sponsor, Vertex Pharmaceuticals Inc. and National Sponsor, CARSTAR Collision and Glass, for their generous support and commitment to our community.

Save the date📅: Our next Walk Day is on May 30, 2027!

What made Walk Day special for you? Share your highlight with us in the comments.

05/31/2026

It's Walk Day! 👟

Today we celebrate the 22nd year of the Walk To Make Cystic Fibrosis History and the incredible support of our amazing CF community. 💙

Thank YOU for joining us across the country as we take a a brighter future for all Canadians living with CF.

Keep an eye on our Facebook and Instagram stories to see all the exciting activities happening at various Walk locations across the country. You can share your own stories with us by tagging and using the hashtag !

05/30/2026

We’re getting ready to take a a future without limits at the Walk To Make Cystic Fibrosis History! 💙

Whether you’re walking with us in person or virtually, your support makes a powerful difference. Together, let’s help change the CF story!

📅Date: Sunday, May 31, 2026
📍Location & Time: Check your local Walk page on CrowdChange
👟Don’t forget: wear your Walk t-shirt, bring your water bottle, and share your photos with us on social media by tagging and using the hashtag !
🔗Learn more: https://bit.ly/4beb6LF

05/29/2026

Your summer can be made too! If you’re 13+ and live with cystic fibrosis, join us at Camp Fromaway this July! Spend July 13 to 17, from 12 to 2 p.m. ET, at virtual camp filled with games, activities, conversations, and connection with other youth living with CF across Canada.

Registration is open now until June 12! 👉 Save your spot: https://www.upopolis.com/ninja-forms/13fwqs/

05/28/2026

Tick-tock, time to walk! ⏰ Final days to register! The countdown to Cystic Fibrosis Canada’s Walk To Make Cystic Fibrosis History is here, and your participation is crucial. Register, fundraise and get ready for an exciting experience filled with friends, family, and community. This is your moment to shine! tomorrow. https://bit.ly/3MPmPbc

Photos from Cystic Fibrosis Canada's post 05/27/2026

This June, explore fundraising events happening across Canada and join communities in supporting people and families affected by cystic fibrosis.

- Spread Love Charity Golf Tournament: June 6 (QC)
- Sink it for CF: June 7 (MB)
- Strokes Fore Life: June 8 (ON)
- Oilman’s Golf 50/50: June 11 (AB)
- Boyle Co-op BBQ: June 12 (AB)
- Points East Lighthouse Run: June 13 (PEI)
- Trifecta pour la FK: June 13-14 (QC)
- Battle for Breath: June 13-14 (ON)
- 9 and Dine for Cystic Fibrosis: June 14 (ON)
- Edmonton Ride for the Breath of Life: June 15 – July 15 (AB)
- Home Hardware Annual Supplier Partnership Charity Golf Tournament: June 16 (ON)
- 65 Roses Highwood Golf Tournament: June 18 (AB)
- Peel Ride for the Breath of Life: June 27 (ON)
- Robbie International Soccer Tournament & Festival: June 20 – 29 (ON)
- Vancouver Half Marathon: June 28 (BC)
- GearUp4CF Virtual Ride: May 9 – August 31 (BC)
- Sasha’s Sweets: May 23rd (& every other Saturday) - October 24th (ON)

Find upcoming events on our website: https://cysticfibrosis.ca/events-hub

05/27/2026

What does growing up with cystic fibrosis look like today compared to 20 years ago? 💭🎙️

Out now: Episode 4 of Breathless, following two families navigating two very different realities of CF. From Ross Drake facing uncertainty after his sons’ diagnoses in the early 2000s to Brittany Holliwink raising her son in an era of earlier detection and life-changing treatments, their stories show just how much has changed and how much still hasn’t.

Listen now wherever you get your podcasts. 🎧

05/26/2026

You’re invited to go behind the science of cystic fibrosis research 🔬💙 Join our upcoming Spotlight on CF Research Webinar on June 17 to hear directly from Canadian researchers exploring new insights into CF-related diabetes, innovative ways to improve antibiotics for lung infections and the mental and emotional realities of life in the modulator era 🧪🫁💭.

Featuring Dr. Sylvie Lesage, Dr. Joel Finbloom and Dr. Jonathan Rayment, this live bilingual webinar is your chance to learn more about where CF research and care are heading next and ask questions live! Happening June 17 from 2:00–3:15 p.m. ET with English & French simultaneous interpretation.

Can’t make it live? Register anyway and we’ll send you the recording afterward: https://bit.ly/4usH4Mw

Photos from HealthPartners - PartenaireSanté's post 05/25/2026
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