22/07/2025
https://youtu.be/Ur1haeKRmCs?si=0zCn5H6nCEecEkPe
Been asked to post this song by Charlene Lake and it's a sing she wrote about fibro
Fibro Fog (Fibromyalgia)
A song i've created dedicated to all fibromyalgia warriors ...
21/07/2024
Looks like I've been hacked don't accept and friends request from me please xFx
04/12/2022
Hi guys.
As some of you know I've been pushed out by Anne. I was wondering if anyone would be interested in meeting up somewhere for a social afternoon or evening in the new year. I still have the phone number and will turn it back on if anyone thinks its worth it..
Truthful answers please as I'm seriously thinking of starting my own group!
07/11/2021
Hi guys,
Anne has made up a new website. Any thoughts on it?
15/03/2021
Hi guys been asked to ask this from one of our friends xFx
Hi..can you possibly ask if anyone has a solution to tendon pain in elbows and hand/wrist tissue..im unable to take any ibuprofin type relief..thank you
07/03/2021
Been asked to inquire if anyone has used red light therapy for flare ups? xfx
21/12/2020
Been asked to post this anonymously 🦋Frances🦋
can you post this as an anon post please.
I was diagnosed with fibro after having my son in 2012. previously had cancer twice and severe back injury that required surgery.
for a few years I managed with help from a good gp and medication. then my GP retired and it has went down hill. they stopped all my pain meds only give me anti depressants.
I started having seizures that were linked to the pain, still they wouldn't help. I live in a small village so only 1 gp practice.
over the last 2_3 year I barely leave my house, I have an 8 yr old son and it is just the 2 of us. he is an amazing boy and so sweet. if it wasnt for him I would have ended it long ago.
recently I have been thinking that he is missing out on so much with me as a mum cos I can't do anything. my brother and sister in law have twin boys the same age and I know they would look after him and give him a great life.
I cant see how i can make it through xmas in this pain. i struggle to climb the stairs . I used to love cooking and baking but can no longer stand to do it. my housework has fallen behind but I make sure my son has clean clothes for school every day.
I just want to be able to give him a good xmas day, but will spend the day surrounded by pillows on the sofa crying in pain. I have asked my gp for a small supply of painkillers to get me over the holidays but the denied me.
what can I do.? xx