19/07/2025
Another old story, cleaned up with AI.
My Favourite Story: The Lives We Didn't Lead I wanted to share this story and recording because it’s always felt special to me.
David Clegg (founder of the Trebus Project) will maintain this page with updates on forthcoming publications, live events and press.
The Trebus Project contains a huge archive of fascinating stories told by people with dementia. Their stories have been pieced together in locked wards, care homes and hospital units across the UK.
19/07/2025
Another old story, cleaned up with AI.
My Favourite Story: The Lives We Didn't Lead I wanted to share this story and recording because it’s always felt special to me.
23/04/2025
More about this + link to a free download here: https://dclegg.substack.com/p/how-soon-is-now
Subscribe to the page if you'd like more.
09/04/2025
I met a few people while running art projects in hospitals and care homes who, every few seconds, needed to be reminded of where they were and what they were doing. One of them, Paula, had to be told that she was safe and in the right place constantly, or her head would tilt back, her eyes would lose focus, and she would start to scream. I thought it might help if I held her hand, but it made no difference. All I had to do was stop talking to her and she would zone out or start to shout, “What am I doing? Please help me!” Playing her favorite music occasionally helped, but she would need someone to sit with her and remind to listen. In truth, her life was lived in a state of almost constant panic. The care staff would dress her and help her eat. She could use cutlery, but without being reminded every few seconds, she would drop the food on the floor and start to scream. Inevitably, she would be returned to her room soon after getting up, hoping she might fall asleep.
More here: https://dclegg.substack.com/p/this-is-a-test
24/03/2025
Read more here: https://dclegg.substack.com/p/a-dream-for-actors
16/03/2025
I'm adding the Trebus Project material to Substack. I'm also adding previously unavailable recordings of actors including Russell Tovey, Fiona Shaw and Juliet Stevenson.
Here's the link: https://dclegg.substack.com/
10/01/2025
Link here: https://dclegg.substack.com/p/jan
12/12/2024
https://dclegg.substack.com/p/sheila-hugo-part-3
Sheila Hugo - Part 3 Stories about people living with dementia, told in their words.
06/12/2024
A short substack post about how the Trebus Project began and a section from Sheila Hugo's remarkable story.
Dust on the Rubber Tree I established the first artist residencies to work exclusively with people with dementia in their homes.
22/11/2024
The Trebus Project has migrated to Substack. Over the coming months I'll add unpublished stories told by people living with dementia and new monologues recorded by Alison Steadman, Juliet Stevenson and Paul Whitehouse. Follow on https://substack.com/
22/11/2024
The Trebus Project has migrated to Substack. Over the coming months I'll add unpublished stories told by people living with dementia and new monologues recorded by Alison Steadman and Juliet Stevenson. Follow free on https://substack.com/
06/10/2024
Care home shareholders make an awful lot of money keeping people alive who would much rather be dead.