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Sickle Cell Society UK

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Sickle Cell Society UK

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The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group o

The Sickle Cell Society is a registered charity that supports and represents people affected by sickle cell disease to improve their overall quality of life.

28/10/2026

💙 Protect Your Health This Winter – Get Your Flu Vaccine!

As we approach the colder months, we're joining nine other leading health charities in encouraging people living with long-term health conditions to get their free NHS flu vaccine if eligible.

For people living with sickle cell and other long-term health conditions, flu can pose a greater risk of serious illness and complications.

Our CEO, John James, has joined fellow charity leaders in signing an open letter highlighting the importance of vaccination and protecting our communities this winter.

💉 Getting vaccinated can help protect you and those around you.

Find out more via the link here:https://buff.ly/CDDbLre

If you're eligible, or think you may be, speak to your GP or pharmacist, or visit the NHS website for more information.

🧡 Let's work together to keep our communities safe this winter.

26/10/2026

📢 We're Hiring! Peer Mentors in Colchester & Essex! 🧡

We're looking for passionate individuals to join our Children and Young People's Peer Mentoring Programme in Colchester and Essex!

This is a great opportunity to support and empower young people living with sickle cell, offering guidance, encouragement and a space to connect with someone who understands their experiences.

📍 Location: Colchester & Essex
📅 Closing date: Monday 30 November 2026 at 12pm

🧡 Want to make a difference in the lives of young people living with sickle cell?

👉 Find out more here https://buff.ly/6kZWuqg

23/10/2026

📢 We're Hiring! Mentors & Lead Mentors Across the North of England! 🧡

We're expanding our Children and Young People's Peer Mentoring Programme and looking for passionate individuals to join our team across the North of England!

These roles offer an opportunity to support, encourage and empower young people living with sickle cell, helping them build confidence and navigate the challenges they may face.

We're recruiting for two roles:

🧡 Mentors – Liverpool, Manchester, Sheffield, Leeds & Newcastle
🧡 Lead Mentors – Liverpool, Manchester, Sheffield, Leeds & Newcastle

Both roles offer flexible home working and the chance to make a real difference in the sickle cell community.

📅 Closing date: Monday 16 November 2026 at 12pm

Interested in joining our team? Follow the link to find out more https://buff.ly/VCCcSQh

16/10/2026

🧡 Let’s Talk About It – Honouring Our Communities!

This Black History Month, join Glana Gift and the University of Kent Psychology Society for an evening celebrating African and Caribbean culture, heritage and community.

Through music, cultural food and conversation, the event aims to bring people together, raise awareness of sickle cell and celebrate the richness of our communities.

All proceeds from the event will be donated to the Sickle Cell Society to support our work. ❤️

📅 Friday 23 October 2026
⏰ 5pm – 7pm
📍 KLT2, Keynes College, University of Kent, Canterbury Campus

🎟️ To book your place, visit on Instagram and follow the link in their bio.

A huge thank you to Glana Gift and the Psychology Society for organising this event and supporting the sickle cell community!

15/10/2026

🧡 What an incredible time at ASCAT 2026!

Our team had a fantastic experience at ASCAT last week, connecting with inspiring individuals from across the sickle cell community and even getting involved in the Culture Day celebrations! 🌍✨

Our CEO, John James, and Elizabeth Naamorkor Caulley, North-East England Peer-to-Peer Mentoring Programme Coordinator, also had the pleasure of meeting Dr Lanetta Brontë, President and CEO of the Foundation for Sickle Cell Disease Research (FSCDR), and her daughter, Kyla.

It was wonderful to connect, share experiences and celebrate the incredible work being done to improve the lives of people affected by sickle cell.

A huge thank you to everyone who made ASCAT 2026 such a memorable experience. We're already looking forward to ASCAT 2027! ❤️

14/10/2026

📢 We’re Hiring! Join the Sickle Cell Society

We’re looking for a Community Support Worker Lead to join our team in North East London!

This role will help support people living with sickle cell following hospital discharge, providing practical advice, emotional support and guidance to help them access the care they need.

📍 Location: London (Havering, Queen’s Hospital)
⏰ Hours: 21 hours per week
📄 Contract: 2-year fixed term
📅 Closing date: Friday 30 October 2026

🧡 Passionate about making a difference in the sickle cell community? We’d love to hear from you!

👉 Find out more and apply via the link in our bio or visit https://buff.ly/kLKcec2 .

13/10/2026

📢 We're Hiring! Join the Sickle Cell Society

We're looking for three Clinical Leads to support our Children and Young People's Peer Mentoring Programme across the North East and Yorkshire!

This is an opportunity for experienced healthcare professionals to help strengthen our mentoring programme, providing clinical guidance and oversight to ensure young people living with sickle cell receive safe and effective support.

📍 Locations: Sheffield, Leeds and Newcastle
🏠 Working arrangements: Primarily remote
📄 Contract: 12-month fixed term
📅 Closing date: Monday 19 October 2026 at 12pm

🧡 Passionate about improving care and outcomes for young people living with sickle cell? We'd love to hear from you!

👉 Find out more and apply via the link in our bio or visit https://buff.ly/kLKcec2 .

01/10/2026

October is Black History Month.

This year's theme, Honouring Our Communities, is about recognising the people whose contributions sustain a community and often go unacknowledged.

For the Sickle Cell Society that history is not abstract. This charity exists because families affected by sickle cell organised to create it. The specialist care that exists today exists because people built it, often without institutional backing.

Throughout October we'll be marking that — and looking at what still needs to change.

30/09/2026

🩸 “People in the Black community really do need to donate blood.”

Shorna lives with sickle cell disorder and knows how important access to the right blood can be for people who need transfusions.

Currently, just 3% of blood donors are of Black heritage, yet Black heritage donors are more likely to have the Ro blood type needed to treat many people living with sickle cell.

This Sickle Cell Awareness Month, we’re working with Give Blood Spread Love to encourage more people from the Black community to consider becoming blood donors.

Every new donor can make a difference and help ensure blood is available when someone needs it. ❤️

👉 Find your nearest donor centre at my.blood.co.uk or follow on Instagram for more information.

Story shared with permission. Sources: NHS England and NHS Blood and Transplant.

28/09/2026

⏰ 2 DAYS TO GO – CALL FOR EVIDENCE

There are just 2 days left to submit evidence to the APPG on Sickle Cell and Thalassaemia as part of its inquiry into improving sickle cell and thalassaemia services.

We want to hear from people living with sickle cell or thalassaemia, families and carers, healthcare professionals, researchers, health system leaders and relevant organisations.

📅 Deadline: 30 September 2026

Your experiences and expertise can help inform the APPG’s work and contribute to improving services for our communities.

Find out more about how to submit via our website.

Address

54 Station Road
London
NW104UA

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.sicklecellsociety.org/

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