31/10/2024
Happy diwali πͺ
Our daughter Kumud is battling the severe Spinal Muscular Atrophy Type 1. Her limited movement & breathing challenges demand intensive care.
Treatment at AIIMS, New Delhi, is essential but financially daunting at 14 crores. Your support is needed.
31/10/2024
Happy diwali πͺ
18/10/2024
Donate us now its too urgent π
17/10/2024
Fight for kumud π donate kumud and save his life π¦
16/10/2024
Spinal Muscular Atrophy (SMA) type 1 is a rare and severe neuromuscular disease that affects infants within the first six months of life:
14/10/2024
Donate us now π
12/10/2024
Vijayadashami, also known as Dussehra or Dasara, is one of the most important Hindu festivals, symbolising the triumph of good over evil.
05/10/2024
Maa Chandraghanta is worshipped on the third day of Shardiya Navratri. She is one of the nine forms of Maa Durga and governs the planet Shukra. The goddess mounts the tigress and is depicted with ten hands.
04/10/2024
The second day of Navratri is dedicated to Maa Brahmacharini, one of the nine forms of Goddess Durga. Maa Brahmacharini is revered for her penance, devotion, and calm demeanour. Worshipped as the epitome of perseverance and strength, she grants her devotees courage, wisdom, and emotional balance on this occasion help my baby girl πποΈ
03/10/2024
Help our ghar ki laxmi πHelp kumud in this navratri. Help our small baby πποΈ
02/10/2024
There are four types of SMA: Type 1 is the most common and severe form of SMA. Itβs sometimes called Werdnig-Hoffmann disease or infantile-onset SMA. Children with type 1 have limited movement, canβt sit without support, and have trouble breathing, feeding, and swallowing.
01/10/2024
Gene therapy is a treatment option for SMA type 1. The goal of gene therapy is to introduce a healthy copy of the SMN1 gene into the motor neurons so that the body can produce the survival of motor neuron (SMN) protein. One brand-name prescription drug, Zolgensma, is FDA-approved to treat SMA type 1 in children less than 2 years old