Sickle Cell Community Consortium

There are over 200 non-profit Community-Based Organizations (CBOs) for sickle cell disease in the U.S. The Consortium exists to address the needs of the CBOs.

The Consortium was founded in February of 2014 to provide a platform to unify, strengthen and increase the visibility of SCD community-based organizations

https://linktr.ee/sicklecellconsoritum The Sickle Cell Community Consortium (SCCC) was founded in Februrary of 2014 to provide a platform to unify, strengthen and increase the visibility of sickle cell community-based organizations (CBOs) thro

ughout the country. This Consortium is founded on the belief that a "house divided against itself cannot stand" and a commitment to create an outstanding model of commUNITY and patient engagement. We have developed a unified entity, modeled after the U.N. where the individual needs of each CBO can be identified and addressed as a unit, while maintaining the autonomy of each individual organization. SCCC is not a CBO, nor does it seek to replace the actions or activities of existing CBOs. Sickle cell disease CBOs exist to address the needs of the sickle cell community. Our mission is to assist the CBOs in identifying the needs of their patient population, to aggressively seek funding to address those needs, provide infrastructure support and a platform for collaboration and cooperation between individual CBOs, governmental agencies and pharmaceutical and corporate stakeholders. Our CBO partners span across the country and are actively involved in direct patient services, support services, education, awareness and advocacy. These CBOs collaborate with the Consortium and with each
other on a wide range of projects to benefit the sickle cell community. These projects include, but are not limited to, the development of educational materials and sickle cell toolkits, transition services geared towards the teen
market, bereavement services and funeral cost assistance, medical accountability, legislative calls to action, and the creation of a platform to assist data collection and analysis for patient-reported outcomes and research. With strong commitment to fund-raising, charitable donations and grants, we have built, and will continue to strengthen and grow, a network of patient and advocate-powered community non-profit organizations dedicated to redefining what it means to live with, conquer and overcome sickle cell disease.

06/02/2026

LA… we’re coming to the WEST! 🌴☀️

Warrior Con ’26 is headed to Los Angeles, California, and this is about to be more than an event.

This is where the sickle cell community comes together to learn, laugh, connect, celebrate, and make memories that last long after the weekend is over.

It’s giving family reunion, community, legacy, and that “we need you to be in the room” kind of energy.

Join us July 22–26, 2026 for a powerful week of advocacy, education, wellness, research, celebration, and connection.

✨ Legacy in Action: The Next Move
📍 Los Angeles, California
📅 July 22–26, 2026
🌴 Registration drops next week

Save the date, send it to the group chat, and start planning now.

06/01/2026

🩸 Adults Living with Sickle Cell Disease Needed for a Paid Research Study

Researchers at Georgia State University are seeking adults living with sickle cell disease to participate in a confidential online study exploring:

✨ Stress
✨ Pain
✨ Anxiety
✨ Cannabis Use

Who can participate?

✔️ Age 18 or older
✔️ Diagnosed with sickle cell disease
✔️ Cannabis users and non-users are welcome

📝 One-time online survey
⏱️ Takes approximately 25–35 minutes

🎁 Receive a $25 gift card upon completion

To participate:
📱 Scan the QR code on the flyer
🔗 Visit: https://gsu.qualtrics.com/jfe/form/SV_1FFHwT00dXcOzRk

Questions?

📧 [email protected]
📞 (404) 441-5433

There is currently no participation deadline. Recruitment will remain open until the enrollment goal has been reached.

Please share with fellow warriors and members of the sickle cell community who may be interested in participating.

05/27/2026

Please join us in wishing a very special Happy Birthday to our incredible Director of Finance, Mother Doris Bailey

Today we celebrate not only a remarkable leader, but a woman whose heart, wisdom, grace, and nurturing spirit have poured endlessly into this community. Your love and dedication have touched so many lives, and your presence continues to be a guiding light for warriors, caregivers, families, and all who have the honor of knowing you.

Mother Doris, thank you for every sacrifice, every prayer, every encouraging word, and every moment you’ve given to help uplift this community with love and compassion. You embody strength, kindness, elegance, and service in the most beautiful way.

Today, we honor YOU the way you so deeply deserve. 💙

May this new year of life bring you overflowing joy, peace, continued health, laughter, and countless blessings returned back to you.

Everyone, please join us in flooding the comments with love and birthday wishes for the amazing Mother Doris Bailey! 🎉🎂

🎂

05/21/2026

🚨 HAPPENING TODAY 🚨

🩸✨ YOUR STORY. YOUR COMMUNITY. YOUR VOICE. ✨🩸

Join us TODAY for an important virtual conversation surrounding the Texas Sickle Cell Registry and what it could mean for the sickle cell community across Texas and beyond. 💬❤️

If you are living with sickle cell, carry the trait, care for someone who does, or want to better understand how this registry may impact our community and future care this conversation is for YOU.

📅 TODAY — Thursday, May 21, 2026
🕢 7:30 PM EST
🕡 6:30 PM CST
🕟 4:30 PM PST

Hosted by Dr. Tomia Austiin featuring:
✨ Prashant Sharma, MBA
✨ Victoria Salinas, MPH

This conversation matters because our lived experiences, stories, treatments, and outcomes deserve to be counted, understood, researched, and represented. 🩺📊

📲 Scan the QR code or copy the link to join us tonight!

https://us02web.zoom.us/meeting/register/tZYpfuyurT0jEtYpL0T_U0S4HgNTWAQdl18i?utm_source=ig&utm_medium=social&utm_content=link_in_bio&fbclid=PAdGRleAR6xnFleHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xMjQwMjQ1NzQyODc0MTQAAaeBUTV5YolB5oPYEdErxmzDxWe_nOSHi5X7A0NGh_7AskVZaw71dFAcEUYR1Q_aem_rZH9p7oMQNJ_PPtyxA2z8g #/registration

05/20/2026

Texas just gained a major win for the sickle cell community. ❤️🩸

The new Texas Sickle Cell Registry is an important step toward improving awareness, research, healthcare resources, and support for individuals and families impacted by sickle cell disease.

Join us for SCALATE as we discuss what this means for the future of sickle cell care across Texas and why community voices matter in this conversation.

📅 Thursday, May 21, 2026
💻 Virtual Event

Scan the QR code or copy the link in your browser to register (link in story):

https://us02web.zoom.us/meeting/register/tZYpfuyurT0jEtYpL0T_U0S4HgNTWAQdl18i?utm_source=ig&utm_medium=social&utm_content=link_in_bio&fbclid=PAdGRleAR6xnFleHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xMjQwMjQ1NzQyODc0MTQAAaeBUTV5YolB5oPYEdErxmzDxWe_nOSHi5X7A0NGh_7AskVZaw71dFAcEUYR1Q_aem_rZH9p7oMQNJ_PPtyxA2z8g #/registration

HealthEquity

05/18/2026

Please join us in wishing a very special HAPPY 32nd BIRTHDAY to one of our incredible staff members, Aaron Washington! 🎉🎂✨

Aaron, your spirit, heart, dedication, and light shine so brightly within the sickle cell community and in the lives of so many around you. Thank you for the compassion, support, hard work, and positivity you continue to pour into this space every single day.

Please continue being the bright star that you are because this community truly needs you. 💛Your impact does not go unnoticed, and we are so grateful for all that you do.

Wishing you a year filled with joy, purpose, blessings, success, peace, and unforgettable moments. Happy 32nd Birthday, Aaron! 🥳🎈🎁

05/15/2026

Today, we lay to rest and honor the extraordinary legacy of a woman who meant so much to so many our beloved Aunt Rose. 🌹

Aunt Rose was the definition of grace, strength, wisdom, service, and unconditional love. She carried people through some of life’s hardest moments with compassion in her heart and honesty in her words. She was a protector, an advocate, a guiding light, and a safe place for countless people within the sickle cell community and beyond.

She loved deeply, gave endlessly, and showed up for others even when it was inconvenient because that was simply who she was. A phenomenal mother, grandmother, sister, aunt, friend, and “Mama Bear” to so many of us. There will never be another Rose.

Though our hearts are heavy today, we are grateful for every lesson, every laugh, every prayer, every embrace, and every memory she leaves behind. Her impact will continue to bloom in every life she touched.

Rest beautifully, Aunt Rose. Your love, your voice, your elegance, and your legacy will live on forever. 🌹🤍

If you would like to support Aunt Rose’s family during this time, please consider giving here:

www.tinyurl.com/rosebaileymillard

05/15/2026

Tomorrow, we gather to honor, celebrate, and lay to rest a truly phenomenal woman, Rose Mary Bailey-Millard, lovingly known to so many as Aunt Rose. 🌹🤍

Aunt Rose was the definition of grace, wisdom, strength, compassion, and unconditional love. Her impact reached far beyond words, touching countless lives throughout the sickle cell community and beyond. Her legacy of advocacy, service, honesty, elegance, and deep love for family will continue to live on in all of us forever.

For those who would like to join virtually as we celebrate her beautiful life and legacy, please see the livestream information below starting promptly at 11am EST.

📍 Livestream Link:
tinyurl.com/RoseMary-BaileyMillard

📍 To support the family:

www.tinyurl.com/RoseBaileyMillard

Please continue to keep her children, grandchildren, loved ones, and all whose lives she touched in your prayers during this difficult time. 🕊️🌹

05/12/2026

In loving memory of the phenomenal Rose Bailey-Millard, lovingly known to so many as “Aunt Rose.” 🌹💙

A woman of grace, wisdom, compassion, strength, and unwavering love. Aunt Rose touched countless lives through her kindness, advocacy, laughter, honesty, and the way she embraced people like family. Her presence brought comfort, warmth, and light into every room she entered, and her impact on this community will live on forever.

Her children and family are deeply grateful for the overwhelming love, prayers, support, messages, calls, and beautiful memories that have been shared by the sickle cell community and beyond during this difficult time. Your kindness has truly meant so much to them.

Funeral & Burial Services will be held at:

Roswell Funeral Home & Green Lawn Cemetery & Mausoleum

📍 950 Mansell Road, Roswell, GA 30076

Viewing:
Thursday, May 14, 2026
6:00 PM – 8:00 PM EST

Funeral Service:
Friday, May 15, 2026
11:00 AM EST

Repast information will be announced at a later time.

To support the family:
https://tinyurl.com/rosebaileymillard

Please continue to keep the Bailey-Millard family lifted in prayer during this time. Her love, legacy, and beautiful spirit will never be forgotten. 💙🌹

Claim ownership or report listing

Want your business to be the top-listed Government Service in Atlanta?

Click here to claim your Sponsored Listing.

Location

Atlanta

Website

http://www.sicklecellconsortium.org/

Address

P. O. Box 1195
Atlanta, GA
30028

Opening Hours

Monday	9am - 6pm
Tuesday	9am - 6pm
Wednesday	9am - 6pm
Thursday	9am - 6pm
Friday	9am - 6pm
Saturday	9am - 6pm

Sickle Cell Community Consortium

Share

Location

Category

Website

Address

Opening Hours