Fanconi Cancer Foundation

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Fanconi Cancer Foundation

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Fanconi Cancer Foundation, 360 E. 10th Avenue, Suite 201, Eugene, OR.

Our mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community. ➡️ www.fanconi.org

10/22/2026

At our 2026 FA Scientific Symposium banquet in Phoenix, we honored Fanconi Cancer Foundation co-founder Lynn Frohnmayer with a Lifetime Achievement Award.

Watch highlights from an evening celebrating Lynn’s decades of commitment to people with Fanconi anemia, the research she helped make possible and the community that has supported this work.

Thank you, Lynn, and to everyone who has been part of this shared effort.

Learn more: https://fanconi.org

10/21/2026

A handmade card can become someone’s favorite part of bedtime. 💌

After receiving her Postmarked with Love cards, Aélya’s family shared:

“We hung a string with lights in her bedroom with all the cards 😊 Every night she picks one card to read again. So a big thank you for this gesture and to make our daughter smile and not feel alone!”

Want to help create moments like this? Gather your friends, family or co-workers for a card-making party! Bring out the markers, share some snacks and make cards that help people in the FA community feel connected and cared for.

💙 The next card deadline is Dec. 3! No artistic skills needed, just a kind message and a little creativity.

Find card guidelines and mailing details here: https://fanconi.org/send-your-support/

10/20/2026

How can we prevent cancer in people with Fanconi anemia? Find it earlier? Develop safer treatments?

At the 2026 FA Scientific Symposium, researchers shared progress toward answering these questions, alongside work focused on bone marrow failure, gene therapy and stronger collaboration across the field.

Some approaches are entering clinical studies. Others are helping researchers identify which ideas show enough promise to keep moving forward.

Just as important, people with FA, caregivers and bereaved families shared their experiences through the EL-PFDD meeting, helping connect research priorities with the realities of living with FA.

Swipe for several highlights, then read the full recap: https://fanconi.org/new-findings-next-steps-research-highlights-from-the-2026-fa-scientific-symposium/

10/15/2026

Before there was a worldwide FA community, Lynn Frohnmayer was reaching out to families by mail, calling researchers and searching for answers for her children.

More than four decades later, that care and persistence continue to shape our community.

On Oct. 2, we honored Lynn with FCF’s Lifetime Achievement Award, surrounded by people whose lives and work she has touched.

Thank you, Lynn, for bringing us together and keeping families at the heart of it all. 💚

Read her remarkabletory: https://fanconi.org/honoring-lynn-frohnmayers-lifetime-of-commitment-to-the-fa-community/

10/14/2026

Congratulations to Dominika Michalíková and Dexter Sherrell, our 2026 Winn/Byrd Award recipients!

First-place recipient Dominika is expanding access to FA information and support in the Czech Republic, including translating the Fanconi Anemia Clinical Care Guidelines into Czech.

Second-place recipient Dexter brings his experiences with FA, cancer and transplantation to advocacy and mentoring, helping individuals and families have a voice in research and care.

We’re grateful for the leadership and care they bring to our community. Learn more about their work and what’s next for each of them: https://fanconi.org/dominika-michalikova-receives-the-2026-winn-byrd-award-for-adults-with-fa/

10/09/2026

Eugene friends, you’re invited to do a lot of good with a little wicked fun! 🧙‍♀️✨

Join us for Be Wicked for Good, a festive evening benefiting Fanconi Cancer Foundation and research focused on FA and cancer.

📅 Thursday, Oct. 22
⏰ 5–7:30 p.m.
📍 J. Scott Cellars on 5th
🎟️ Tickets: $35

Come dressed in your bewitching best and enjoy contests, prizes, photo opportunities and a little magic. Each ticket includes a custom Be Wicked for Good w**e glass and keepsake charm. Costumes are highly encouraged!

Get your tickets: fundraise.fanconi.org/BeWickedForGood

10/08/2026

Sometimes, (in fact, often!) a path into FA research begins with a personal connection.

This summer, Ryan Brownsweiger joined an NIH research group after being inspired to apply by his college roommate, who is living with FA. Ryan recently presented his work at the NIH Summer Student Poster Day, alongside members of the research team.

We’re grateful to Ryan for bringing his curiosity to FA research, and to his roommate for inspiring him to get involved. 💪🧬

10/07/2026

What a meaningful few days together in Phoenix! 💙🧬 Thank you to everyone who joined us for the Scientific Symposium and Adult Retreat. Your ideas, experiences and connections made these gatherings tremendously special.

We’re grateful to the researchers, clinicians, adults with FA, families and supporters who shared their knowledge and helped us look ahead with hope and purpose. Detailed update coming later this month.

We’re already excited to see you again in 2027:
📍 Denver in August for the Adult Retreat
📍 Madrid, Spain, in September for the FA Europe Scientific Symposium

Thank you for being part of this community.

09/25/2026

Please join us in welcoming Dr. Eunike Velleuer-Carlberg to FCF’s Scientific Advisory Board! 💙

The board voted unanimously to welcome Eunike, a longtime clinician-scientist whose work brings together research, clinical care and a deep commitment to people with Fanconi anemia.

Eunike has met and examined more than 1,000 people with FA and followed many over the course of years. She helped develop less invasive approaches to oral cancer screening, co-led the FA Cancer Awareness Team and moderates the European FA Virtual Tumor Advisory Board.

“Each person has taught me something I could never have learned from the literature alone,” she says.

We’re grateful to have Eunike’s experience, compassion and perspective guiding FCF’s work to prevent cancer, find it earlier and improve care.

Learn more about Eunike: https://fanconi.org/people/eunike-velleuer/

09/24/2026

A few kind words can mean so much. 💌

After receiving cards through Postmarked with Love, Grace shared:

“I just received all of the kind, funny and heartwarming letters today. I want to say thank you so much! I’m truly blessed to know that so many people care and support me during this difficult time.”

Nominations are now open for the next round of Postmarked with Love.

If you know an individual with FA, caregiver, sibling, bereaved family member or someone else affected by FA who could use encouragement or help celebrating a milestone, nominate them to receive a surprise package of handwritten cards.

Nominate someone through the link in our bio or at fanconi.org/send-your-support.

Address

360 E. 10th Avenue, Suite 201
Eugene, OR
97401

Website

https://fundraise.fanconi.org/FAMonth

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