Cerebral Palsy Research Network - CPRN

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Cerebral Palsy Research Network - CPRN Cerebral Palsy Research Network (CPRN) | Community | Research | Education | Wellness

This distinction matters. The causes of cerebral palsy are related to an event or disturbance that impacts the developin...
10/23/2026

This distinction matters. The causes of cerebral palsy are related to an event or disturbance that impacts the developing brain and the areas responsible for controlling and coordinating movement. But, even if the cause is a defined event or one-time event, it’s impact on the individual’s health and wellbeing continues and may change over the course of the person’s life. That’s one reason lifespan research is an important focus for the CP Research Network where we understand that addressing the healthcare needs of people with CP and their families doesn’t stop in childhood.

Learn more at CPRN.org 🔗

Caregivers need care, too. 💚 Taking time to rest and recharge isn’t selfish—it can help you continue showing up for the ...
10/20/2026

Caregivers need care, too. 💚 Taking time to rest and recharge isn’t selfish—it can help you continue showing up for the people you love. It’s also not always easy to sort out how and when to take breaks but we have a few resources for you.

Keep in mind that whether it’s an outing, a few hours or a longer break, respite care can provide space and a pause that supports your own wellbeing.

Explore caregiver resources and our free wellbeing guide at https://cprn.org/our-toolkits/

Recognizing the early signs of cerebral palsy can help connect children and families with appropriate care, early interv...
10/19/2026

Recognizing the early signs of cerebral palsy can help connect children and families with appropriate care, early intervention, and supportive resources sooner.

Every child deserves access to the support they need to reach their potential, and every family deserves supportive resources along the way!

Learn more about early detection and explore resources from the Cerebral Palsy Research Network.

🔗 Link to purchase Early Detection Family Resource: https://a.co/d/05n0jrCn

Your philanthropic goals can help shape the future of Cerebral Palsy research. Join us in advancing meaningful research ...
10/14/2026

Your philanthropic goals can help shape the future of Cerebral Palsy research. Join us in advancing meaningful research and improving outcomes for people with CP. Make your gift today at 🔗 cprn.org/donate

Actor RJ Mitte was a tremendous disability advocate who used his platform to help others better understand and make spac...
10/13/2026

Actor RJ Mitte was a tremendous disability advocate who used his platform to help others better understand and make space for people with cerebral palsy and other disabilities to thrive. His presence, passion, and talent brought visibility to the disability community and promoted meaningful participation in society and our communities.

As one of the strongest voices calling for authentic disability representation in Hollywood, RJ brought his lived experience with cerebral palsy to the hit series Breaking Bad. He consistently challenged assumptions about disability and directed society’s attention toward possibility, potential, and inclusion. Time and again, those who knew and worked alongside him spoke of his kindness, generosity, and commitment to others.

We are deeply saddened and extend our deepest condolences to his family, friends, colleagues and the greater disability community of people grieving his loss.

If you are struggling in the U.S., you can call or text 988 to reach the Su***de & Crisis Lifeline any time.

Advancing Research. Creating Earlier Opportunities.✨Today is World Cerebral Palsy Day — a day to celebrate the people wi...
10/06/2026

Advancing Research. Creating Earlier Opportunities.✨

Today is World Cerebral Palsy Day — a day to celebrate the people with cerebral palsy and the families, clinicians, researchers, and advocates working toward a better future.

At the CP Research Network, we’re working to turn research into meaningful change for the CP community. Through the world’s largest clinical cerebral palsy registry, our community registry, and partnerships with researchers and people with lived experience, we’re building a stronger foundation for understanding CP and improving outcomes.

That work also means making research accessible to families. Our new Early Detection Family Resource gives families information they can use to better understand early signs of cerebral palsy, ask informed questions, and navigate what comes next.

Together, we’re advancing research, empowering families, and creating a future with earlier answers and better outcomes.
This World CP Day, help us keep that work moving!

Have a birthday or special occasion coming up? Celebrate with a purpose!Introducing Celebrations for CP — a new way to t...
10/03/2026

Have a birthday or special occasion coming up? Celebrate with a purpose!

Introducing Celebrations for CP — a new way to turn your next celebration into an opportunity to support cerebral palsy research.

Whether it’s your birthday, anniversary, graduation, or another milestone, your celebration can help advance research and create a brighter future for people with CP and their families.

🎁 Invite others to make a gift!

Ready to get started? Check out our Celebrations for CP blog post and toolkit, to make your next milestone matter.

🔗 cprn.org/celebrate-with-a-purpose/

New resource from the CP Research Network 💚Early identification of cerebral palsy can help children and families access ...
10/01/2026

New resource from the CP Research Network 💚

Early identification of cerebral palsy can help children and families access appropriate care, resources and support sooner.

The Early Detection Family Resource was created to help make information about early detection more accessible and provide a resource for families, clinicians and others supporting children who may be at risk for CP.

We’re excited to officially share this resource with the CP community.

🔗 Link to Purchase on Amazon:
https://a.co/d/05n0jrCn

Connecting, sharing, and advancing cerebral palsy research together. The Cerebral Palsy Research Network is at the AACPD...
09/29/2026

Connecting, sharing, and advancing cerebral palsy research together.

The Cerebral Palsy Research Network is at the AACPDM 80th Annual Meeting in Philadelphia, connecting with researchers, clinicians, advocates, families, and people with lived experience across the CP community.

From toolkits to research, we’re proud to share resources and create opportunities for meaningful conversations—including offering attendees an early look at our Early Detection Family Research resource.

Together, we’re turning knowledge, collaboration, and lived experience into progress for the cerebral palsy community. 💚

Cortical/Cerebral Visual Impairment (CVI) is a brain-based visual impairment that affects how the brain processes visual...
09/28/2026

Cortical/Cerebral Visual Impairment (CVI) is a brain-based visual impairment that affects how the brain processes visual information. CVI affects both children and adults, but many people may not know that they have it. For some individuals, CVI symptoms can affect daily life in social settings, at work, and at school. https://cprn.org/LEARNING-ABOUT-CVI/

We have a new blog post, Learning About CVI by Danielle Shealy. Check it out to learn more about the evolving understanding of CVI and read about her personal experience.

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