CHD Warriors Colton & Dawson

Colton was born 4/26/16 with Ebstein Anomaly. Dawson was born 10/31/22 with Pulmonary Stenosis. He has an older brother and sister who adore him.

Colton was born 4/26/16 on his Momma's Birthday at Oishei Children's Hospital in Buffalo, NY. We didn't realize Colton was sick until after he was born. He came out a bit blue, nurses didn't think to much of it cause he regained color fairly quick. When they got him to the nursery is when our lives changed and I heard those terrifying words, there is something wrong with your sons heart we heard a

Murmur and need to get him down to the NICU. After that they did some imaging and testing we learned that his Tricuspid Valve was stuck open so to much blood was flowing through. (That will not fix itself, he will need a valve replaced when he starts becoming symptomatic) Also they noticed that the pressure in this lungs was severe and diagnosed him with Pulmonary Hypertension, unfortunately their is no cure for that. They also stated his PDA (Hole that is supposed to close at birth) was still open, also another hole, PFO was open because of the regurgitation from the valve. While in the NICU his heart rate got up to 300 so at that point they found he had Tachycardia. He is currently on meds for that every 8 hours. At about two months old during a routine Cardiology appointment they noticed he had Pulmonary Artery Stenosis. His pulmonary artery is too narrow for the blood to flow though. (Another thing that we are waiting for him to become symptomatic). Our goal his as long as he doesn't get worse hold off as long as possible until he's bigger and stronger!! Colton’s baby brother Dawson was born 10/31/2022 on Halloween night at the UT Medical Center in Knoxville, TN. He’s a big boy like his big brother was weighing 9lbs and he was 21.5” long! He looks a lot like Colton did too. Dawson's CHD was discovered at 1 day old, the nurse heard a very strong murmur. The immediately took him to the NICU. They had requested a Pediatric Cardiology consult with is where we learned he had Pulmonary Valve Stenosis and Epstein's Anomaly like his big brother. At 3 days old they transferred him from UT to Vanderbilt University Medical Center were the next day he had undergone a Balloon valvuloplasty. They mentioned that this isn’t a permanent solution but we have to get the valve open for now, then we watch and see. He was released a few days later. His Cardiologist said its extremely rare to have Epstein's but to have siblings with it is unheard of! His plan is in the future to do genetic testing and see what the link could be. In the mean time just like Colton he'll go to the Cardiologist yearly and let his body tell us the next steps. Thank you for helping us pray for our son and raising awareness for CHD!!

10/28/2025

Hey!! So sorry I haven’t posted recently.. not too much going on lately but Colton had his routine cardiology follow up.. not the best news.

So we are headed in the wrong direction but not there yet.. his Pulmonary Hypertension has got worse and also his Tricuspid Regurgitation (Valve Leakage) has also got more severe.. the right side of his heart is mildly enlarged.

He has gained some weight so we need to get some of the weight off of him and see where we are at in two years. 🙏🙏

Photos from CHD Warriors Colton & Dawson's post

08/12/2025

Sorry guys been slacking on posting! Life’s been crazy! These boys are still doing amazing! Colton started 4th grade two days ago.. can you believe that!? Don’t y’all remember when he was first born!? They grow too quick! 🥰

02/14/2024

♥️ National CHD Awareness day ♥️

Today is more than just Valentines Day it’s National CHD Awareness day, as most of you might know Colton and Dawson were both born with one of the rarest congenital heart defects, Epstein’s Anomaly which occurs in 1 in every 200,000 live births and accounting for

11/09/2023

Colton’s HOME!! The discharged him since his 02 has been steady at about 93. He still has a fever but they said that we can just monitor him to let this virus pass. His cough has become more productive, which we’re grateful for because he needs to get that out of his lungs. So he’s resting trying to heal.

But then I come to a sick Dawson with a 103.7 but Sounds like he may have caught it from Colton. Praying he heals quick at HOME! 🙏

11/07/2023

Your prayers are working! God is good! 🙏 So they took Colton off oxygen to see how he does and so far awake he hasn’t dropped under 92.. they are okay with his 02 being 88 and up. His cough is rough but now productive so that’s a good sign!

This is the first time he’s ate in 5 days and he wanted ice cream so ice cream is what he got! Don’t worry, I made him eat half of his grilled cheese first 😉

Now we just got to see what is 02 drops to in his sleep..

11/06/2023

Colton update:

Last night was a bit rough and he’s now on Oxygen. She did mention that he’s too sick for the regular floor and should have been sent to the ICU. So waiting for their determination if they will transfer him. This sickness has kicked his asthma in full gear.. and it’s horrible to watch. Thanks so much for everyone’s continued prayers! Colton’s a fighter since birth.. he’s got this! 🥰🙏

11/06/2023

Thanks so much for all the prayers just keep them coming! Colton is now on oxygen and has been admitted into children’s hospital because he’s still struggling to breath and keep his stats stable! My poor baby! 🙏🙏

11/05/2023

Say a prayer for Colton if you have a few minutes to spare.. we’d be grateful!

He’s been diagnosed with Pneumonia and RSV and he’s very sick! He’s had his O2 between 88-92 for a few days and heart rates 180s. He’s struggling and hate to watch this. He needs to feel better soon! 🙏🙏

10/31/2023

Happy 1st Birthday to this amazing little boy!

You are one of the toughest kids we know and we’re so grateful for you! You having a special heart is not going to hold you back.. and we’re so grateful that God is watching over you and has allowed us to continue to watch you grow and strive! You are everything we didn’t know we needed!

We love you so much Dawson James! 🥰❤️

10/23/2023

It’s hard to read but Colton had his annual cardiologist appointment today. He’s still mild to moderate but we’re surgery free for another year! He actually is moving his checkups to every two years!! Such exciting news!

We truly appreciate all your prayers for the boys, you all have got us and the boys through some of our hardest times and it’s great to allow you to watch them grow up and share them with you! 🥰🙏

10/14/2023

This handsome little guy got his first haircut! 🥰

09/25/2023

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