PWANY Family Support

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PWANY Family Support This page is for parents who have children with PWS across NYS. For information on OPWDD, IEP’s, Services and Support Group information, contact Nina Roberto.

This is a safe space for support, advocacy and hope. PWANY is a volunteer driven, non-profit organization, and a chapter of The Prader-Willi Syndrome Association, USA (PWSAUSA). Our mission is Advocacy, Support and Hope for children with Prader-Willi Syndrome. We assist families in New York State with issues of educational advocacy, crisis support, as well as educational and medical referrals. We are available to parents across the state helping to acquire desperately needed services from the Office of People With Developmental Disabilities. In fact, PWANY is a fundamental resource working to provide a strong, united voice for those with PWS. With your support, the NYS Alliance will be able to continue to serve over 400 New York State residents with PWS and their families. We are here for you and your child from infancy to adulthood and are proud to be able to be your NYS PWS advocate.

Share your story!
05/01/2026

Share your story!

Every story matters. 🧡

For Prader-Willi Awareness Month, we’re inviting families to share their personal journeys and testimonials. Your voice could inspire, comfort, and empower someone who needs it most.

Whether it’s a moment, a challenge, or a victory—your story can make a difference.

Submit yours today and help us raise awareness together. ✨

Please send your stories to: [email protected]

Address

New York, NY

Telephone

+18004421655

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