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Monday 10am - 3pm Tuesday 10am - 3pm Wednesday 10am - 3pm Thursday 10am - 3pm Friday 10am - 3pm

North Carolina Down Syndrome Alliance

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North Carolina Down Syndrome Alliance

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The NCDSA empowers, connects, and supports individuals with Down syndrome, their families, and the Community through outreach, advocacy and education in NC.

North Carolina Down Syndrome Alliance is an effective, compassionate, and comprehensive resource on Down syndrome throughout North Carolina. NCDSA envisions a culture in which all people with Down syndrome are empowered to achieve their full potential and live healthy, productive lives as valued citizens within the fabric of society.

11/05/2026

We know there are plenty of reasons why getting away for a weekend might feel easier said than done. Between family responsibilities, busy schedules, and everything else on your plate, making time for yourself isn't always easy.

But you deserve time to recharge, connect, and spend time with moms who understand your journey. You don't have to have it all figured out. Just come as you are!

Swipe through for a few reminders of why we hope you'll join us at the Moms Retreat!

Register here: https://secure.qgiv.com/for/2027momsretreat/event/momsretreatregistration

11/01/2026

Kicking off November with a week full of fun!

We hope you’ll join us for one (or more!) of our upcoming events. With opportunities for the whole family to connect and enjoy time together, there’s plenty to look forward to!

Check out event details and register here: https://secure.qgiv.com/for/sprinca/event/monttemcmc/https://secure.qgiv.com/for/sprinca/event/monttemcmc/

10/31/2026

As October (and DSAM) comes to a close, one thing remains true all year long: Down syndrome is something to celebrate every day!

We celebrate the individuality, talents, milestones, and potential of people with Down syndrome every single day. Here’s to embracing what makes each person unique and building a community where everyone has the opportunity to thrive, not just in October, but all year long!

https://www.ncdsalliance.org

10/30/2026

We know Halloween is still on the calendar, but holiday fun waits for no one!

Join the NCDSA and Sunny The Fun Fairy- The Raleigh Fairy for the Christmas Parade on November 21! This year, we’ll have a FLOAT, too, so there’s fun for all ages!

Parade Day: November 21 | 8:30–10:30 AM
Meet: St. Mary’s & Hillsborough Street in downtown Raleigh
Attire: NCDSA attire
Pre-Parade Party: November 20 from 5–7 PM at the NCDSA office

Walking participants must be 8 or older per city rules, but younger participants can ride on our float! A $25 donation is requested, and donations are welcome even if you can’t attend.

We’re also looking for adult volunteers to walk alongside the float as spotters (please contact [email protected] for details)!

For registration and details, visit: https://sunnythefunfairy.net/parades/ncdsa

10/30/2026

North Carolinians, here’s your friendly reminder that early voting closes tomorrow, October 31, at 3pm!

Are you a voter? Drop a photo of you and your cool sticker in the comments!

10/30/2026

📣 Your attention please 📣

Diversity is having a seat at the table.
Inclusion is having a voice.
Belonging is having that voice be heard.

Learn how you can put advocacy into action: https://www.ncdsalliance.org/advocacy/

10/29/2026

Get your sample ballot at https://www.ncsbe.gov/voting/sample-ballot

Fill it out ahead of time and bring it with you to the polls so you can focus all your attention on filling in the bubbles and NOT worrying about remembering all those candidates’ names. Easy peasy lemon squeezy. 🍋

10/29/2026

Please join us in welcoming Chareen Monk back to the NCDSA Board!

Chareen is a speech-language pathologist, advocate, and mother of four adult children; Trey, Jordan, Myles, and Jacob. She’s dedicated her over 30 year career to working with individuals with intellectual disabilities and complex communication needs and will bring a unique blend of personal experience and professional expertise to The Board.

Chareen's mission will focus on educational advocacy, connecting families in rural areas and spreading positive awareness and community representation. Her service is deeply personal and inspired by her son Myles, who has Down syndrome.

Outside of work, Chareen and her husband Stanley enjoy relaxing in the mountains and can be found on any given Sunday in Lambeau Field cheering on their son Jacob and the Packers.

10/29/2026

People first language puts the person before the diagnosis, recognizing that Down syndrome is just one part of who someone is: "A person has or with Down syndrome" NOT "a Down's person or the Down syndrome kid."

By choosing our words thoughtfully, we show respect for each individual and recognize them for who they are, not just their diagnosis.

10/28/2026

Boston Children’s Hospital is conducting a survey to understand how well medical providers are giving information about Infantile Spasms (IS) to families of infants with Down syndrome. IS is a form of epilepsy in babies under 12 months. It occurs in babies with Ds more than the general population.

Please consider participating in this research no matter how old your child with Ds is. https://redcap.tch.harvard.edu/redcap_edc/surveys/?s=RX9MYDJL4T7WKR3X

Address

2621 Spring Forest Road, Suite 102
Raleigh, NC
27616

Opening Hours

Monday	10am - 3pm
Tuesday	10am - 3pm
Wednesday	10am - 3pm
Thursday	10am - 3pm
Friday	10am - 3pm

Telephone

+19842001193

Website

https://www.ncdsalliance.org/

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