Elijah Braiden Cash Bailey Foundation

Happy birthday Eli… wish you were here to celebrate it… miss you so much. Gonna hang out with Chloe and Garrett and Mom and drink root beers and burp!!
You should be here!!!
I want to explode!!!

So… my birthday is coming up if you wanna do something and are in a situation where you can support my homie with an extra chromie Nolan and his dad Mike Erdei and order YOU a shirt from http://teamnolan.strangerartist.com/
(We will order our family’s, including Eli’s)

Team Nolan Shop – Homies with Extra Chromies! Team Nolan was originally founded in 2016 for the annual Buddy Walk for Down Syndrome Association of Northeast Indiana. Since then, Team Nolan has continued to grow all across the country and even the world!

We are partnering with Las Chingonas De Tejas and in Houston and Yes! Prep Academy to provide new shoes for kids this upcoming school year. Shoes can be dropped off at our coffee shop (Corazon Coffee) in Houston, Texas at 3302 Canal Street from now until August 6. If you would like to make a donation and have us purchase the shoes, please let us know and we will work out the details. Thanks!

Things are happening, just you wait…

Today is . According to the NIH there are approximately 7,000 Rare Diseases that affect about 25 to 30 million Americans. Not really that rare, huh?

The fact is that these are only statistics until it affects you...your friends...your family. I am the mother of a child who was born with a rare disease. Eli had Wolff-Parkinson White SVT, a type of Tachycardia that results from extra electrical pathways in the heart and can cause a very rapid heartbeat. Most of the time patients who have episodes can take medicines and make lifestyle adjustments that can help lessen these, but some episodes just happen for seemingly no reason and can even happen in their sleep. Most of the time symptoms are mild and sometimes an ablation can be performed to try to find any excess overactive pathways, but there is still much more to learn about the condition and how to treat it effectively and even the surgery doesn’t guarantee a fix since some excess pathways may not be found during the surgery. Most of the time life expectancy is not affected, but there is still that chance...even when they tell you not to worry about that...

The reality is that Rare Diseases change lives and families. We are forever changed because of Eli and because of his heart condition. Today is the day we raise our hands to bring awareness to these diseases so that more research can happen in order to give doctors better information and treatment options to share with these families.

To help raise awareness and continue research efforts for WPW SVT and other heart conditions, donations can be made to the American Heart Association.

Thank you for remembering our Eli. 💛

Pic credit:

Re-doing things around here, we are laying the groundwork for some pretty awesome things… STAY TUNED!!!

Moving and shaking, Moving and shaking…

Check out the free sampler featuring Dylan Disaster , Jon Snodgrass Music and Joey Cape (our favorite duo) and Micah Schnabel, despero and more. Www.ebcbfoundation.bandcamp.com
Or order it from
https://www.ebcbfoundation.org/forever13comp
All proceeds will go to the Elijah Braiden Cash Bailey scholarship fund that is set to start in 2024. Which is his year to graduate.

Elijah Braiden Cash Bailey Foundation Elijah Braiden Cash Bailey Foundation. Richmond, Texas.

We put out a free sampler for Forever 13... featuring Jon Snodgrass Music and Joey Cape. Please take a listen ( https://ebcbfoundation.bandcamp.com/track/six-song-sampler ) or go order it here: https://www.ebcbfoundation.org/forever13comp

Six Song Sampler, by V/A Forever13 track by V/A Forever13

We are excited to give you all a sample of the tribute to Eli. please check out https://ebcbfoundation.bandcamp.com/track/six-song-sampler
please listen to the whole track!

The company was good and the pizza was hot! Thanks to all those who came out! We’re excited to see this event grow each week, and we hope to see more of you out next Saturday night...we’ll be serving up more ‘za for a good cause! 💛

The Boudin Pizza at Corazon Coffee is so delicious and colorful! 😍🤤 Come get one tonight from 6-10 pm! 808 Third Street. See you there!