01/12/2023
Great news!
The National Fragile X Foundation
Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan. We focus on Advocacy, Education, Research, and Treatment.
03/03/2019
Another successful NFXF Advocacy Day in Washington DC. Thank you to those who are our voice and who championed our mission and awareness.
NFXF Advocacy Day - Another Success
Advocacy Day 2019 is done, and by all measures, it was another success. Fragile X advocates visited 56 Senate offices and 61 House offices – all of their home districts. We had fun, connected with old friends, and met new ones. But, most importantly, we advanced Fragile X research, legislation to ...
04/18/2018
Today is California Fragile X Awareness Day. Grateful for all those who made this happen years ago.
03/06/2017
Thank you to so many for allowing our voices to be heard and for the advocacy you do! If you are interested in being a part of Advocacy Day in 2018, let us know.
NFXFAD 2017
On March 1, 2017, the National Fragile X Foundation hosted its annual Advocacy Day. Over 180 people, including self-advocates, took on Capitol Hill to share ...
03/02/2017
Awesome that these amazing families are representing and advocating for Fragile X! 180 strong today on Capitol Hill advocating for you! Thank you to so many for forging ahead! ❎
Today is NFXF Advocacy Day! More than 180 advocates are here right now on Capitol Hill speaking with their Members of Congress about Fragile X. That's a new record for us! Show your support by Liking this photo!
04/18/2016
Today is California Fragile X Awareness Day!
Thank you to California State Senate Republican Leader Dennis Hollingsworth (R-Murrieta) who while in office, back in 2006 sponsored legislation establishing Fragile X Awareness Day in California. This helped the Fragile X community in California to support greater funding for research, awareness, and family support.
Today, April 18th, we celebrate Fragile X!
03/03/2016
Advocacy Day for Fragile X - we are making progress every year! Keep up the fight for awareness - support - research - treatment! Thanks everyone!
03/03/2016
These Self Advocates were simply amazing! What better way to educate Congress about Fragile X than to meet one of these fine individuals. Thank you Self Advocates for all you do!
03/02/2016
150+ strong! 2016 Fragile X Advocacy Day in Washington DC! You can make a difference!
09/27/2015
This group accomplishes great things! Mouse Racing is fabulous! :)
06/27/2012
Register for the 13th International Fragile X Conference in Miami this July 25 - 29.
Registration for 13th International Fragile X Conference Now Open!
Please join us for the 13th International Fragile X Conference in Miami, Florida July 25– 29, 2012. Online Registration is now open! Register Early to SAV