๐จ The deadline to submit a photo for the 2026 NDSS Times Square Video Presentation is June 4! Submit at https://pci.jotform.com/form/260194472490156
National Down Syndrome Society
NDSS is creating a world where individuals with Down syndrome thrive
The National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
05/22/2026
People with Down syndrome, like everyone else, use behavior to communicate. When they canโt clearly express their needs, feelings, or discomfort, it may show up as behaviors that interrupt daily routines.
In this free webinar, Thaddeus J. Nestheide, PsyD, Bree Stepp, BCBA, COBA, and Amanda Steel, MA from the Timothy Freeman, MD, Center for Developmental Disabilities will offer parents, families, and caregivers a practical way to understand and respond to challenging behaviors. They will also share helpful tools and resources you can use along the way.
Join us on May 28 at 6 PM ET by registering at https://ndss.org/ndss-webinars
05/21/2026
Each year to kick of the NYC Buddy Walk, NDSS puts on the Times Square Video Presentation, where photos of 500 individuals with Down syndrome are displayed on two jumbotrons in the heart of Times Square!
๐๐ผ๐ป'๐ ๐บ๐ถ๐๐ ๐๐ต๐ฒ ๐ฑ๐ฒ๐ฎ๐ฑ๐น๐ถ๐ป๐ฒ ๐๐ผ ๐๐๐ฏ๐บ๐ถ๐ ๐ฎ ๐ฝ๐ต๐ผ๐๐ผ ๐๐ต๐ถ๐ ๐๐ฒ๐ฎ๐ฟ! Applications close June 4 and applicants will be notified by July 8 if their photo has been selected or not. Find details and the application link at https://ndss.org/nyc-buddy-walk-tsv
On Tuesday, June 2 at 10 AM ET, NDSS is hosting a virtual meeting with the U.S. Food and Drug Administration (FDA) to discuss Down syndrome-associated Alzheimer's disease (DS-AD).
You can:
โญ๏ธ Attend the meeting
โญ๏ธ Submit comments before the meeting
โญ๏ธ Participate during the meeting by answering poll questions, calling in with comments, or emailing responses to be read on air
This meeting will give the FDA and other key decision makers the chance to hear directly form patients, their families, caregivers, and advocates about the symptoms of DS-AD, the impacts on daily lives, experience with current treatments, and hopes for future therapies.
Get meeting details and learn how you can make an impact during this meeting at ndss.org/el-pfdd
05/19/2026
Exciting news! ๐ฅ We are thrilled to announce that NDSS' Manager of Public Policy, Kayla McKeon, has made the Forbes Accessibility 200 list that honors her work as one of the biggest innovators and impact-makers in Accessibility!
We're so proud to see Kayla's fierce advocacy and unwavering dedication to the Down syndrome community recognized by Forbes for the second year in a row!
The list includes the top 200 global impact-makers in Accessibility-related fields like communication, mobility, education, software, consumer products, robotics, sports and recreation, travel, the workplace, entertainment, and more.
Read more at www.forbes.com/lists/accessibility
05/18/2026
NDSS is honored to support self-advocates with Down syndrome in pursuing their goals, whether itโs starting a business, continuing education, or following a personal passion.
๐จ Find an NDSS scholarship that's right for you or someone you know and ๐ฎ๐ฝ๐ฝ๐น๐ ๐ฏ๐ ๐ ๐ฎ๐ ๐ฎ๐ฎ๐ป๐ฑ at ndss.org/scholarships.
05/17/2026
๐ฃโโ๏ธ Paddles Up for Down Syndrome, NDSSโ Dragon Boat team, took home GOLD in their division at the Washington, D.C. Dragon Boat Festival yesterday!
Congratulations to our paddlers and THANK YOU to our incredible cheer squad!
๐ We have two spots available for the Independence Dragon Boat Regatta in Philadelphia on June 6! Email Misty Adams at [email protected] to claim the spots.
05/16/2026
Join us on May 21 at 1 PM ET as Helen Genova, associate director of the Center for Autism Research at Kessler Foundation, walks attendees through the web-based program, KF-Strideโข.
๐ต This program is backed by research and designed to help teens and adults identify their personal strengths and express them to achieve their goals.
๐ต Created with neurodiverse learners in mind, the KF-Strideโข curricula cover a range of topics such as employment readiness and wellness. KF-Stride offers key advantages over existing programs, which have focused on fixing what someone is doing โwrong.โ Instead, KF-Stride focuses on what someone is doing โright.โ
Register for free at https://ndss.org/ndss-webinars
05/14/2026
The 2026 NDSS Down Syndrome Advocacy Conference concluded yesterday with 125 meetings on Capitol Hill to talk about policies impacting the Down syndrome community!
Weโre so grateful to everyone who made this event possible, for attendees who showed up to help move the needle, and for everyone who took action on our policies priorities from home! Weโre proud to play a role in amplifying the voices of this community.
Didnโt get to join us in person but still want to use your voice and make a difference? Visit ndss.org/ndss-action-alerts to learn about the policies we advocated for on Capitol Hill and write to your members of Congress about them!
Happy Motherโs Day to all of the moms and mother figures in our community! ๐ฉต๐ We hope you feel loved and cherished today and every day.
05/09/2026
The National Down Syndrome Society Bright Future Fund Scholarship is here to support individuals with Down syndrome as they pursue college and job training. Whether youโre taking the next step in post-secondary education or building new job skills, this opportunity is for YOU!
Applications will close on May 22nd at 11:59 PM. Apply at https://ndss.org/bright-future-fund
Click here to claim your Sponsored Listing.
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