National Down Syndrome Society

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NDSS is creating a world where individuals with Down syndrome thrive

The National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

10/31/2026

We're searching for senators to pass Charlotte's bill this Halloween! 🔍

The Charlotte Woodward Organ Transplant Discrimination Prevention Act would prohibit discrimination based solely on disability in the organ transplantation process and provide additional recourse to people with Down syndrome and other disabilities should they experience discrimination.

Use our action alert to urge your senators to support Charlotte's bill when it goes before the full Senate at https://ndss.quorum.us/campaign/111217/

10/30/2026

NDSS tiene una meta importante: fortalecer nuestra conexión con la comunidad y asegurarnos de que las voces de las personas con síndrome de Down y sus familias sigan guiando nuestro trabajo.

🚨 ¡Queremos escuchar tu voz! Si tienes síndrome de Down, eres familiar, cuidador, o apoyas a alguien con síndrome de Down, queremos conocer tu opinión.

Completa un breve cuestionario para saber si puedes participar en una entrevista por video de 60 minutos o en una encuesta en línea de 15 minutos.

https://survey.alchemer.com/s3/9061527/ndss-community-resources-study-screener-sp?fbclid=IwY2xjawVRxQdleHRuA2FlbQIxMABwZG9mAWJyaWQRMThTaHVQc1owMHlOSVhIZ1NzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEfHqdXXQU_HKoKWAQHY4GjQCoDympkSnB6WbY9kSwJ6XWgZBCANIHFH8GRqEI_aem_JhY1VLvkrZnocgJtfGjvxA

10/30/2026

41 athletes will take on the TCS New York City Marathon this weekend as part of ! In addition to training for 26.2 miles, they've raised critical funds for NDSS and raised awareness of Down syndrome. 👏 Help us wish them good luck and tune into our Stories on Sunday to help cheer them on!

10/29/2026

In this small moment, Margot realized something big: Hannah wasn't just being included; she was being celebrated for exactly who she is. Whether you are celebrating a first step, trying a new food, or starting a new job, everyday wins, big and small, deserve to be celebrated. 👏

For more than 45 years, NDSS has worked to create a world where individuals with Down syndrome have opportunities to learn, work, belong, and thrive. You can help us build this world long after ends by becoming a monthly donor.

Sign up to provide the steady support that helps NDSS champion belonging at give.ndss.org/everydaywins

10/29/2026

We're proud to announce our partnership with FDU men's basketball, who will wear an NDSS patch on their jerseys this season! 👏 We're excited to cheer on the Knights and work together to create a world where individuals with Down syndrome thrive.

10/28/2026

Save the date for the 41st NDSS Gala & Auction, Voices That Move Us, on 𝗧𝗵𝘂𝗿𝘀𝗱𝗮𝘆, 𝗠𝗮𝗿𝗰𝗵 𝟭𝟭, 𝟮𝟬𝟮𝟳, at Cipriani South Street in New York City.

✨ Don't miss an elegant evening of dinner, dancing, silent and live auctions, and a special performance by Mark Tremonti Sings Frank Sinatra. Together, we will celebrate the power of community while raising critical funds to lead change and expand opportunities for individuals with Down syndrome.

Formal invitation and ticket details to follow. Learn more at https://ndss.org/events/gala

10/27/2026

Join us on November 3 from 1-2:30 PM ET as we explore why routine eye care matters and take a closer look at keratoconus, a frequently overlooked condition affecting up to 71% of individuals with Down syndrome!

This webinar is designed for self-advocates and care partners and will include practical signs to watch for, the importance of early screening, and how protecting eye health can make a lifelong difference.

This webinar will be recorded and sent to registrants. Register for free at https://ndss.org/ndss-webinars

10/26/2026

- Meet Ruben!

“My name is Ruben Reuter, and I want to find acting roles that challenge preconceptions of people with Down syndrome. That’s why I’m excited to be involved with a new film called Bottled Up, because the character gets up to all sorts of adventures. It’s a very exciting role for me!

I wish people knew that Down syndrome is not a problem. It’s a natural occurrence that’s been around forever. We’ve always been here and deserve the same rights as everyone else. A big obstacle is people having low expectations of you because you have Down syndrome. They make assumptions about what you can and cannot do. I’d say give us more opportunities, and we will surprise you!

I was nine years old on The Dumping Ground, the UK’s favourite children’s TV show, as a returning character, Finn Mclaine, and I won a Royal Television Society Award for best performance as Finn. I’ve danced a duet with Northern Ballet at the Royal Opera House in London, played Percival in Lord of the Flies at Chichester Festival Theatre, and am a Special Olympics aquatics gold medal winner at the national level. I work for Channel 4 News on their special reports – I am the UK’s first learning disabled news reporter. I can also trash my dad at table tennis!

People with Down syndrome have loads to give if they are given the chance. We never stop learning.”

10/25/2026

In July, NDSS launched our new strategic plan, with a central goal of deepening community engagement and making sure the voices of individuals with Down syndrome and their families continue to shape everything we do.

🚨 We want to hear directly from self-advocates, community members, caregivers, and decision-makers of loved ones with Down syndrome! Complete a brief pre-survey questionnaire to see if you are eligible for a 60-minute video interview or a 15-minute online survey.

Take the survey in English at https://survey.alchemer.com/s3/9045156/alchemer-survey

Take the survey in Spanish at https://survey.alchemer.com/s3/9061527/ndss-community-resources-study-screener-sp

10/24/2026

🗳️ Visit our voting resources page at https://ndss.org/voting-resources to make sure you’re prepared to vote on Tuesday, November 3!

By exercising your right to vote, you can help shape policies that impact individuals with Down syndrome and other disabilities. 👏

Address

1155 15th Street NW, Suite 540
Washington D.C., DC
20005

Telephone

+18002214602

Website

http://www.ndss.org/

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