Evan the Brave: The Hero who Fought his Body

Home
United States
Houston, TX
Evan the Brave: The Hero who Fought his Body

Directions Website

Inspired by my son Evan’s journey through illness,Iwrote this story to help children and families facing similar challenges.

It offers hope, strength, and comfort to kids dealing with anxiety and fear in medical settings, reminding them they’re not alone.

10/27/2026

Dear Diary,

Today I remembered my kid is sick again.

And somehow, even after all these years, it still hits just as hard. 💜

Just another page from the diary of a medical mom. 🫶🏽✨💜

10/16/2026

The rides were fun, but apparently Evan’s favorite attraction was the bench. 😭😂💤

Living with chronic ITP means fatigue can hit HARD, even when he’s having the time of his life.

A HUGE thank you to for their accessibility accommodations! 💜 We were able to use a pass that helped us avoid standing in long lines, and it was an absolute lifesaver for our family.

Sometimes it’s the little accommodations that make the BIGGEST difference. 🥹

If you’re planning a Dollywood trip with a child who has a medical condition or disability, ask me about our experience! I’m happy to explain how it worked for us in the comments. 💜

10/06/2026

When your kid has had ITP since he was 2, some things just become… normal. 💜

Blood draws? He’ll tell you which arm works best.
Platelets? Casual dinner-table vocabulary.
Mystery bruise? Mom’s already investigating. 😂
Pre-game soccer routine? Cleats, shin guards… and Mom checking his legs.

Sometimes I forget how not normal our normal probably looks to everyone else. But to Evan? It’s just life. And somehow, he rolls with it. 💜
Now I need to know.. what’s something YOUR kid thinks is completely normal that would make another parent do a double take? 😂👇

10/04/2026

Apparently Evan’s lifelong philosophy has been: if it can be climbed, sat on, jumped off of, or otherwise used incorrectly… he’ll find a way. 😂

He was diagnosed with chronic ITP at 2, which means his platelets can run low and I have spent the last seven years trying to keep this child from treating life like one giant obstacle course.

As you can see, it’s going great. 😑😂

ITP is part of his life but underneath all the blood draws, platelet counts and mom worrying, he’s still just Evan.

And Evan has apparently never once received the memo that he’s supposed to be careful. 💜

Please tell me I’m not the only mom raising a child with absolutely ZERO sense of self-preservation. 😂

10/02/2026

His diagnoses is part of his story. It was never meant to be the whole story.💜

09/29/2026

This smile right here is exactly why we spread awareness.

If you met Evan, you probably wouldn’t know he lives with a chronic autoimmune blood disorder. You’d see a goofy, happy 9-year-old hanging out with his brother, playing sports, laughing, and just being a kid.

What you wouldn’t see are the blood draws. The platelet counts. The medications. The bruises and petechiae we watch closely. The appointments. The precautions. Or the constant question in the back of our minds: “What are his platelets?”

Evan was diagnosed with ITP at just 2 years old. Seven years later, it’s still part of his story but it has never been the whole story.

That’s why we share. Not for sympathy, but for awareness. Because sometimes chronic illness looks exactly like this: a smiling kid living a completely normal moment while fighting something most people around him can’t see.

We still pray for the day we can say “Evan is in remission.” Until then, we’ll keep advocating, educating, wearing purple, and letting this brave boy LIVE. 💜🩸

ITP is part of his life. It does not define his life.

09/26/2026

“But you don’t look sick though.”

That’s the thing about invisible illness you see the dancing, the laughing, the wild little boy living his life.

You don’t always see the blood draws, hospital rooms, medications, appointments, bruises, numbers we watch, or the battles happening behind the scenes.

He doesn’t look sick.

He looks like Evan. 💜

And that’s exactly how we want it.

09/25/2026

Today was such a special day. 💜 We had the opportunity to read, share our story, spread awareness, and answer questions in honor of ITP Awareness Week.

What made it even more special was having our whole family there together. We got to talk about ITP, educate others on what life with a rare blood disorder can really look like, and turn our own journey into an opportunity to help someone else understand.

It was incredibly humbling to see people listen, ask questions, and genuinely want to learn. These are the moments that remind me why sharing our story matters. 💜

Happy ITP Awareness Week! 🩸💜
And don’t forget to WEAR PURPLE to help us spread awareness! 💜

09/22/2026

💜 ITP Awareness Week 💜

This is what ITP looks like sometimes.

Not a hospital bed. Not a scary blood draw. Not bruises or petechiae.

Sometimes it looks like a kid sitting in the car, drinking a milkshake, looking completely healthy.

And that’s one of the hardest things about an invisible illness.

Behind this picture are blood draws, platelet counts, medications, appointments, precautions, questions, and a whole lot of uncertainty. There are decisions other families never have to think twice about — Can he play? Is that bruise okay? Did he hit his head? Are his platelets dropping?

But behind all of that is also Evan. 💜
A funny, wild, brave kid who is so much more than a platelet count.

This week, we raise awareness for him and every person living with Immune Thrombocytopenia (ITP) — especially the kids learning way too young how to be brave.

Small platelets. BIG lives. 💜

09/22/2026

This week is ITP Awareness Week! 💜

I’m really excited (and a little nervous 🥹) to share that Asbury Church reached out and invited me to be part of their Neighbor Project: Cookies + Coffee + Conversation this Thursday.

I’ll be there sharing our family’s medical journey with ITP, what we’ve learned navigating life with a child with a chronic illness, and how Evan’s journey ultimately inspired me to write Evan the Brave: The Hero Who Fought His Own Body.

But I really want this to be about connection.

If you have a child with ITP, another chronic illness, or medical needs that have suddenly thrown you into a world you never expected to be navigating—or if you know a family who does—please come. You don’t have to have everything figured out. Come have some coffee, eat a cookie, ask questions, share your own story, or just meet another parent who understands what it’s like to live with appointments, specialists, bloodwork, school accommodations, medications, and all the emotions that come with it.

One of the biggest things this journey has taught me is that you truly never know what another family is carrying behind the scenes. And sometimes just meeting someone who gets it can mean so much.

📍 Asbury UMC — 5354 Space Center Blvd., Pasadena
📅 Thursday, September 24
⏰ 6:30–7:30 PM

I would absolutely love to see some familiar faces from our community there and hopefully meet some new ones too. 💜

Come as you are. Bring your story. Let’s talk. 🫶🏼

Address

6701 Fannin St, #1400
Houston, TX
77030

Website

https://a.co/d/du8OdRm, https://shop.ingramspark.com/b/084?jS9vDemeV5X25A0ecN9OKV9AsqzzcDW3aGglT9742pJ, https://stan.sto

Alerts

Be the first to know and let us send you an email when Evan the Brave: The Hero who Fought his Body posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.