Frontier at Brain & Mind Centre

After sharing a simple Facebook post about her husband David's frontotemporal dementia, Vickie was overwhelmed by the kindness and support she received from her community. What started as an effort to help others understand dementia turned into a powerful reminder that compassion still exists everywhere around us.

From strangers taking the time to chat with David, to people offering to bring their dogs for him to meet, the response showed how small acts of kindness can bring moments of joy, dignity and connection to someone living with dementia.

It's a beautiful story about community, empathy, and seeing the person behind the diagnosis.

Take a few minutes to read Vickie and David's story:

Here's how a single Facebook post gave Vickie hope about her husband's dementia diagnosis | Region Canberra Hidden disabilities are described as conditions that are not immediately apparent to others but still significantly impact a person's daily…

For anyone considering End of Financial Year donations that would like to support research, here is the link to donate directly to support FRONTIER: https://www.frontierftd.org/donate.

Every dollar helps and donations of $2 or more are tax deductible.

Thank you for your support for our ongoing efforts to improve outcomes for Individuals living with FTD.

Curious about what FRONTIER does? This new video breaks it down.

Hear from Prof Olivier Piguet on how our clinic and research programs come together to advance the field.

The FRONTIER Frontotemporal Dementia Research Group The FRONTIER Frontotemporal Dementia Research Group, based at the Brain and Mind Centre, University of Sydney, is at the forefront of research and specialist...

FRONTIER CARER INFORMATION DAY - SAVE THE DATE!

On Wednesday 30th September 2026, we will be holding the FRONTIER Carer Information Day. Join us to hear updates of the latest findings from FRONTIER's research in FTD with some key services in the space of carer wellbeing and dementia care, and interesting talks.

Registration details and tickets will be out closer to the date!

Hi everyone we are still seeking some volunteers to understand people’s experience in accessing services for care and support following a diagnosis of younger onset dementia.

What’s involved?
We invite you to take part in a 30 minute online survey enquiring into your first-hand experience of navigating access into the NDIS. The survey can be completed by people living with young onset dementia, their family members and/or carers, as well as formal support workers or service providers.

Your insights could help improve support for others.

If you would like to participate in this study, please visit this link or scan the QR code on the photo:
https://redcap.sydney.edu.au/surveys/?s=Y9T8WLDDKDKTAR3T

Have you or someone you know been diagnosed with young onset dementia (onset < age 65)?

We’re conducting a research study on Australian's experiences accessing care and support (e.g. the NDIS) after diagnosis.

Learn more or take part:

redcap.sydney.edu.au

📚 Author Talk – Celie Gannon
🗓 19 March | ⏰ 4:00 PM
📍 Warringah Library

Celie Gannon will be speaking about her heartfelt book, which shares the story of caring for her husband Jim, a talented guitarist who lived with bvFTD.

Celie cared for Jim at home for five years with support from local organisations including Hammond Care, Dementia Support Australia, Proveda, Easylink Community Transport and others.

Her story is one of love, resilience, and the power of community support.

If you’re interested in attending, it should be a meaningful and insightful talk.

YOD‑SIG is hosting its first 2026 webinar on 12 March, 12:30–1:30pm AEDT.

Let us Grow explores how creative and inclusive activities can support people with young onset dementia to live meaningful, connected lives.

You can register for the webinar here:

Let us Grow: Life, Creativity and Connection Attend this free webinar for insights from people who have living experience with young onset dementia and how they challenge themselves to live their best life

Finding voice through loss: how a gift is empowering dementia care at the Brain and Mind Centre.

We’re honoured to be able to share the personal story of Siân Jarrett. Her generous philanthropy has been instrumental in supporting the provision of speech therapy to so many through FRONTIER’s Speech Pathology Clinic, the PPA Communication Project.

On behalf of all those we work with in the clinic, thank you Siân.

Read about Siân’s journey here:

go.sydney.edu.au

We are celebrating the second ever Australian PPA Awareness Day - this year we’ve lined our webinar up with the International celebration so we’ll be joining in a celebration/awareness day that will happen across the world. The focus is on how early intervention can help those living with PPA - especially those with younger onset.

If you would like to participate this free webinar, scan the QR code or visit the website attached to the flyer!